Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all ....Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all involved. By including community values in addition to the legal and moral issues, this project will make well-founded recommendations for the development of laws, policies and guidelines in relation to decisions about frozen embryos and the newly dead.Read moreRead less
When informed consent goes poorly: A descriptive study of health care complaints and medical negligence claims. To correct process failures effectively, one must understand them. This project will improve knowledge of problems and disputes that arise when patients are 'consented' for medical treatment -- an enterprise in which thousands of Australians, many at very vulnerable stages of their lives, are engaged daily. Study findings will advance understanding of breakdowns in the informed conse ....When informed consent goes poorly: A descriptive study of health care complaints and medical negligence claims. To correct process failures effectively, one must understand them. This project will improve knowledge of problems and disputes that arise when patients are 'consented' for medical treatment -- an enterprise in which thousands of Australians, many at very vulnerable stages of their lives, are engaged daily. Study findings will advance understanding of breakdowns in the informed consent process and help shape strategies for reducing them. Our partner organisations are extraordinarily well-placed to carry insights from this work to health professionals in the field, enhancing opportunities for real benefits to patients from the research. The project fits with the national research priority of promoting and maintaining good health.Read moreRead less
The ART of making babies: How human embryo research and assisted reproduction are regulated in Australia and New Zealand. Scientific breakthroughs in the past 25 years have made it possible for people to receive assistance to conceive when they would otherwise remain childless. Access to assisted reproductive technologies is governed by different regulatory frameworks in the states and territories of Australia. We will clarify how clinical practice, service delivery and medical research are in ....The ART of making babies: How human embryo research and assisted reproduction are regulated in Australia and New Zealand. Scientific breakthroughs in the past 25 years have made it possible for people to receive assistance to conceive when they would otherwise remain childless. Access to assisted reproductive technologies is governed by different regulatory frameworks in the states and territories of Australia. We will clarify how clinical practice, service delivery and medical research are influenced by the differing regulatory frameworks. The research will be of national significance to policy makers and legislators and to potential beneficiaries of infertility services and will assist communities to understand how and why these important areas of human concern are regulated. Read moreRead less
Special Research Initiatives - Grant ID: SR0354765
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
Developing a multidisciplinary international research network focussed on maximizing the social and health benefits to Australia of human genetic technologies. The initiative will build upon the Centre for Law and Genetics' existing informal networks, resources and infrastructure with the aim of constructing an Australian based multidisciplinary research network, with extensive functional global links. The network will be designed to facilitate and coordinate collaboration across disciplines, in ....Developing a multidisciplinary international research network focussed on maximizing the social and health benefits to Australia of human genetic technologies. The initiative will build upon the Centre for Law and Genetics' existing informal networks, resources and infrastructure with the aim of constructing an Australian based multidisciplinary research network, with extensive functional global links. The network will be designed to facilitate and coordinate collaboration across disciplines, institutions and geographic boundaries to address the legal, ethical, social, and policy implications of human genetic technologies. It will aim to maximise the social and health benefits in the most effective, efficient and economic manner; avoiding duplication and promoting the free exchange of ideas and information, and fostering cooperative effort on a global scale.Read moreRead less