Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions a ....Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions and avoid litigation for doctors and hospitals. The project also aims to improve the quality of the law by resolving legal ambiguity and proposing reforms. This will further enhance the quality of decision-making, and will reduce defensive medicine and the cost of complying with the law, leading to savings in health expenditure.Read moreRead less
Commercial risk management in the health environment: exploring the legal and ethical boundaries of consent in genetic diagnostic research. There is little empirical research on consent in clinical research, particularly genetic diagnostic testing, despite its key significance to risk management in medical research practice. This study analyses consent procedures of clinicians and researchers for individual research participants. Key clinicians and Laboratory Heads engaged in genetic diagnostic ....Commercial risk management in the health environment: exploring the legal and ethical boundaries of consent in genetic diagnostic research. There is little empirical research on consent in clinical research, particularly genetic diagnostic testing, despite its key significance to risk management in medical research practice. This study analyses consent procedures of clinicians and researchers for individual research participants. Key clinicians and Laboratory Heads engaged in genetic diagnostic research will be interviewed and consent forms assessed. This will produce identification of trends in consent procedures and baseline information for national studies. The significance is the priority accorded genetic research, the need for adequate risk management in that context and development of optimal consent procedures and policy at State and National levels.Read moreRead less
The ART of making babies: How human embryo research and assisted reproduction are regulated in Australia and New Zealand. Scientific breakthroughs in the past 25 years have made it possible for people to receive assistance to conceive when they would otherwise remain childless. Access to assisted reproductive technologies is governed by different regulatory frameworks in the states and territories of Australia. We will clarify how clinical practice, service delivery and medical research are in ....The ART of making babies: How human embryo research and assisted reproduction are regulated in Australia and New Zealand. Scientific breakthroughs in the past 25 years have made it possible for people to receive assistance to conceive when they would otherwise remain childless. Access to assisted reproductive technologies is governed by different regulatory frameworks in the states and territories of Australia. We will clarify how clinical practice, service delivery and medical research are influenced by the differing regulatory frameworks. The research will be of national significance to policy makers and legislators and to potential beneficiaries of infertility services and will assist communities to understand how and why these important areas of human concern are regulated. Read moreRead less
Genetic discrimination in Australia: an exploration of the nature and extent of the phenomenon within the legal and social context. This project involves national, groundbreaking research into the newly-emerging phenomenon of genetic discrimination in Australia. Undertaken by a multi-disciplinary, cross-institutional team with a wide range of expertise, this innovative and topical research will investigate genetic discrimination across three key perspectives: consumers, third parties and the le ....Genetic discrimination in Australia: an exploration of the nature and extent of the phenomenon within the legal and social context. This project involves national, groundbreaking research into the newly-emerging phenomenon of genetic discrimination in Australia. Undertaken by a multi-disciplinary, cross-institutional team with a wide range of expertise, this innovative and topical research will investigate genetic discrimination across three key perspectives: consumers, third parties and the legal system. It will advance the existing knowledge base, both nationally and internationally, and establish comprehensive baseline data for further evaluative research. Important outcomes for each of the three sectors will be generated, as well as a comprehensive overview of this important new Australian social issue. Recommendations will inform the development of appropriate law and policy.
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