Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliance ....Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliances with the government, industry and community partners will develop a practice framework to prevent everyday harms and the escalation to abuse, and to promote safety and wellbeing. The research has policy benefits for capacity-building in the sector to act on the rights and voices of people with disability. Read moreRead less
NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It wi ....NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It will specifically examine the relationship between self-directed individualised funding and its effect on personal well-being, self-esteem and voice, choice and control. People with intellectual disability will act as co-researchers within the study.Read moreRead less
Social disadvantage and economic recession: promoting inclusion and combating deprivation. The onset of recession in the wake of the global financial crisis has reawakened concern over inequality and exclusion. This project will feed directly into the government's new social inclusion agenda by providing a better understanding of the nature of social exclusion, its relation to location-specific and other dimensions of disadvantage, and the processes that trigger and sustain exclusion. A speciall ....Social disadvantage and economic recession: promoting inclusion and combating deprivation. The onset of recession in the wake of the global financial crisis has reawakened concern over inequality and exclusion. This project will feed directly into the government's new social inclusion agenda by providing a better understanding of the nature of social exclusion, its relation to location-specific and other dimensions of disadvantage, and the processes that trigger and sustain exclusion. A specially designed survey will be coordinated with other data collection activity to provide timely new information that will assist government and non-government agencies to promote social inclusion and tackle the root causes of disadvantage.Read moreRead less
Post-parental care planning for rural people with intellectual disabilities. This project addresses the urgent issue of post-parental care plans for people with an intellectual disability and their older parental carers in rural areas. The project aims to co-design a post-parental care planning approach and resources in collaboration with people with an intellectual disability, older parental carers and disability services. The results will be used by the researchers to generate new knowledge on ....Post-parental care planning for rural people with intellectual disabilities. This project addresses the urgent issue of post-parental care plans for people with an intellectual disability and their older parental carers in rural areas. The project aims to co-design a post-parental care planning approach and resources in collaboration with people with an intellectual disability, older parental carers and disability services. The results will be used by the researchers to generate new knowledge on post-parental care transitions and how to construct post-parental care plans within the context of the National Disability Insurance Scheme. The planning approach and resources will assist families and services to avert crisis transitions through improved coordination, preparation and support for post-parental care. Read moreRead less
The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disab ....The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disability and their families. Family impacts can include significant loss of income as parents may have to cease employment to care for their young adult who has limited employment or day placement options. Gaining the knowledge to minimise the disruption to family life, which often occurs at this time of transition, will lead to strengthening Australia's social and economic fabric.Read moreRead less
Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of ....Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of the project include the development of an Australian-first evidence-based resource kit which should provide significant benefits for older people with ID, their family carers and the disability sector, in terms of planning for post-parental housing and care transitions.Read moreRead less
Using 3D printing to improve access to graphics by vision-impaired people. This project aims to investigate the possible benefits of 3D printing for production of accessible materials for vision-impaired people. Currently tactile graphics are used to provide severely vision-impaired adults and children with access to graphical content used in education and in orientation and mobility training. This project is expected to clarify the kinds of graphics for which 3D prints are better suited than ta ....Using 3D printing to improve access to graphics by vision-impaired people. This project aims to investigate the possible benefits of 3D printing for production of accessible materials for vision-impaired people. Currently tactile graphics are used to provide severely vision-impaired adults and children with access to graphical content used in education and in orientation and mobility training. This project is expected to clarify the kinds of graphics for which 3D prints are better suited than tactile graphics, and to build capacity within the national accessible format provision sector for the production and use of 3D prints. Benefits will include increased educational opportunities and quality of life for Australians with severe vision impairment, through improved access to graphic materials used in education and orientation and mobility training.
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Neourobiology Of Human Epilepsy: Genes, Cellular Mechanisms,network And Whole Brain
Funder
National Health and Medical Research Council
Funding Amount
$17,652,824.00
Summary
The team is comprised of neurologists, molecular geneticists, physiologists and brain imaging specialists and leads the world in the discovery of the genetic causes of epilepsy. They will continue to identify genes underlying epilepsy and study how genetic variations result in development of seizures. Advanced brain imaging will be used to understand the effects of genetic variation on brain structure and function. This study may lead to new diagnostic methods and treatments for epilepsy.
The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal ....The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal daily with the lived experiences of disadvantage and poor mental health in people with disabilities, do not have evidence to support policy and service sector reform. This project will provide this critical evidence as well as build research capacity in disability-related research and lead to better monitoring of disability-related health inequities.Read moreRead less
Left to right is front to back: attentional distortions in near and far space for healthy and clinical populations. We are investigating a perceptual bias that makes people think objects right in front of them are actually slightly to the right but objects far away are slightly to the left. This project will help understand why this happens, to help reduce traffic collisions and help people with brain damage that causes similar perceptual biases.