Giving An Adult Life After Fontan Surgery To Those With The Most Severe Congenital Heart Conditions
Funder
National Health and Medical Research Council
Funding Amount
$1,295,355.00
Summary
The Fontan operation is the last of a series of operations performed for babies born with a single pumping heart chamber (ventricle). In the largest research of its kind, the Australia and New Zealand Fontan Registry partners with Heartkids, the parents’ association and the National Heart Foundation are intending to improve their life as they step into adulthood. We believe that our new standardised model of care will decrease their risk of experiencing adverse events such as stroke and reoperat ....The Fontan operation is the last of a series of operations performed for babies born with a single pumping heart chamber (ventricle). In the largest research of its kind, the Australia and New Zealand Fontan Registry partners with Heartkids, the parents’ association and the National Heart Foundation are intending to improve their life as they step into adulthood. We believe that our new standardised model of care will decrease their risk of experiencing adverse events such as stroke and reoperation.Read moreRead less
Electronic Decision Support For Osteoporosis Care To Assist Clinicians And Patients In Primary Care And Hospitals
Funder
National Health and Medical Research Council
Funding Amount
$598,570.00
Summary
Currently there is so much health information for doctors and consumers to sift through important health conditions can be missed. In a world first, a computer decision aid is being developed that will link risk factors for fracture and osteoporosis with the latest scientific evidence about investigations and treatment. It’s not just for doctors but also for the public; with a consumer decision aid being developed to place the latest scientific evidence about osteoporosis at your fingertips.
The Economic And Social Impacts Of Genetic Sequencing For Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$1,263,576.00
Summary
In this project we will quantify the social and financial costs to families of severe intellectual disability that is genetic in origin. We will assess these impacts in terms of poorer carer health, relationship breakdown, lost income and risk of poverty, as well as increased dependence on government, particularly on welfare payments, and reduced personal income tax paid. We will then determine the extent to which modern clinical genomics can contribute to ameliorating these impacts.
Do Additional Allied Health Services For Rehabilitation Reduce Length Of Stay Without Compromising Patient Outcomes?
Funder
National Health and Medical Research Council
Funding Amount
$238,424.00
Summary
This project will examine whether the provision of additional therapy services on a Saturday reduces health care costs, and improves the health of hospital inpatients receiving rehabilitation when compared to the usual Monday to Friday service. Preliminary information suggests additional Saturday rehabilitation services could reduce the time a patient stays in hospital by 3 days. This large clinical trial will investigate the cost effectiveness and patients outcomes of such a service.
Preconception Carrier Screening: Providing Genetically At Risk Families With A Chance To Have Healthy Children
Funder
National Health and Medical Research Council
Funding Amount
$857,443.00
Summary
Current preconception carrier screening is not widely accessible and has no public funding. We will develop a model of the social and economic impacts of genetic disorders on families and government and the cost of a range of genomic technologies to determine the social and economic benefits that could be realised by the introduction of accessible and affordable preconception carrier screening using existing technologies: gene panels and advances in whole genome sequencing (WGS).
Evidence Innovation: Transforming The Efficiency Of Systematic Review
Funder
National Health and Medical Research Council
Funding Amount
$928,417.00
Summary
Australia invests considerable resources developing reliable summaries of research evidence to understand the benefits and risks of drugs and health programs. We will use information technologies and ‘crowdsourcing’ to improve the production of evidence summaries, evaluate this approach in a randomised study, and facilitate implementation throughout Australia. This will improve the translation of research into health practice and policy, reducing research waste and improving health outcomes.
Improving Decision Making On Health Interventions: Factoring In The Long Term Economic Impacts Of Informal (unpaid) Care
Funder
National Health and Medical Research Council
Funding Amount
$628,963.00
Summary
This project looks at the future health of the Australian population that will keep more informal carers out of employment and diminish their own livings standards, thereby reducing funds available to government and the impact of interventions that could improve the health of the population and increase employment of carers.
A Health And Wellbeing Model Of Care For Disability Service Providers
Funder
National Health and Medical Research Council
Funding Amount
$599,428.00
Summary
This project aims to develop a model of care that improves the health and wellbeing of children with a disability, and their parents, implementing it within a major disability service and providing evidence of its impact on outcomes. The research involves partners from service planning, health economics, child health and development working together to ensure that the model of care for services is strongly aligned to the vision for improved outcomes through the National Disability Insurance Sche ....This project aims to develop a model of care that improves the health and wellbeing of children with a disability, and their parents, implementing it within a major disability service and providing evidence of its impact on outcomes. The research involves partners from service planning, health economics, child health and development working together to ensure that the model of care for services is strongly aligned to the vision for improved outcomes through the National Disability Insurance Scheme.Read moreRead less
Indigenous Birthing In An Urban Setting: The IBUS Study
Funder
National Health and Medical Research Council
Funding Amount
$1,345,514.00
Summary
Our novel and exciting multi-agency project will provide maternity care for Aboriginal and Torres Strait Islander women living in Brisbane. It will help ‘close the gap’ in maternal and infant health outcomes and provide much needed evidence-based information to redesign services across the country. Three organisations are involved as equal partners: the Institute of Urban Indigenous Health; the Aboriginal and Torres Strait Islander Community Health Service; and the Mater Mother’s Hospital.
Improving The Health Of Aboriginal Mothers And Babies Through Continuity Of Midwife Care
Funder
National Health and Medical Research Council
Funding Amount
$1,496,532.00
Summary
Indigenous Australians have significantly poorer health than non-Indigenous Australians. This study will evaluate the effect of continuity of midwifery care in pregnancy, labour, birth and the postnatal period (called caseload midwifery) on outcomes for Aboriginal women and their infants. Recent studies (which have often excluded Aboriginal women) demonstrated substantial benefits of continuity of midwifery care for both mothers and babies, e.g. improved rates of low birthweight, preterm birth