Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine sa ....Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine safety surveillance as a case study to evaluate the effectiveness of data linkage (through linking Commonwealth immunisation data to state hospital data) and the methodologies and lessons learnt from cross jurisdictional data linkage can be transferred to other areas. Read moreRead less
Growing up with Cancer: A mixed method examination of how cancer influences the transition from adolescence to adulthood. In the last decade, over 10,000 of Australia's adolescents and young adults were diagnosed with cancer. Over the last 30 years, improvements in survival for 15 - 30 year olds have been the lowest of all age groups.Despite this, few health care facilities have the specialised infrastructure needed for dedicated psychosocial support of adolescents.
In finding out from adolescen ....Growing up with Cancer: A mixed method examination of how cancer influences the transition from adolescence to adulthood. In the last decade, over 10,000 of Australia's adolescents and young adults were diagnosed with cancer. Over the last 30 years, improvements in survival for 15 - 30 year olds have been the lowest of all age groups.Despite this, few health care facilities have the specialised infrastructure needed for dedicated psychosocial support of adolescents.
In finding out from adolescents with cancer what is most important in their care, we aim to identify and develop a range of services dedicated not only to addressing some of their needs, but also to building upon aspects of the cancer experience thought by adolescents as having a positive impact on their lives.Read moreRead less