Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration ....Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration between emergency managers and community services, and improve equitable access for PWD to community-level disaster risk reduction (DRR). The expected outcome will be the co-design of effective mechanisms that state & federal decision makers can use to scale-up disability-inclusive DRR across Australia.Read moreRead less
A new quality of life instrument with older people for economic evaluation. This project aims to develop and validate a new preference-based quality-of-life instrument with applications in aged-care. The new instrument will be developed with older people receiving aged care services, and will focus upon incorporating their values into the measurement and valuation of quality of life for economic evaluation. The new instrument will have immediate applications in quality assessment and economic ev ....A new quality of life instrument with older people for economic evaluation. This project aims to develop and validate a new preference-based quality-of-life instrument with applications in aged-care. The new instrument will be developed with older people receiving aged care services, and will focus upon incorporating their values into the measurement and valuation of quality of life for economic evaluation. The new instrument will have immediate applications in quality assessment and economic evaluation, improving the quality of life and wellbeing of older Australians, and will assist in determining the relative cost effectiveness of new and existing services.
Read moreRead less
Caring at end of life: understanding the nature and effect of informal community care networks for people dying at home. This project will provide an understanding of the function and purpose of caring networks for people at the end of their life, specifically for people who are dying at home. This understanding will enable the development of communities capacity in addition to informing a national health promotion approach to palliative care.
Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of ....Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of the project include the development of an Australian-first evidence-based resource kit which should provide significant benefits for older people with ID, their family carers and the disability sector, in terms of planning for post-parental housing and care transitions.Read moreRead less
Boosting organ donation registration in diverse communities. This project aims to increase the number and diversity of people on the Australian Organ Donor Register. Transplant success can increase when organs are matched between people of similar ethnic backgrounds, but diverse communities have historically low registration rates. This project is significant because it focuses on this disparity to co-create with two diverse communities interactive media and community dissemination strategies th ....Boosting organ donation registration in diverse communities. This project aims to increase the number and diversity of people on the Australian Organ Donor Register. Transplant success can increase when organs are matched between people of similar ethnic backgrounds, but diverse communities have historically low registration rates. This project is significant because it focuses on this disparity to co-create with two diverse communities interactive media and community dissemination strategies that respect cultural and religious beliefs while addressing concerns about donation raised in our previous research. Tested with a third diverse community, the outcome will be a model that can be both scaled and tailored to ensure equitable access to transplantation for all, benefiting the lives of many. Read moreRead less
The Kids in Communities Study: national investigation of community level effects on children's developmental outcomes. This project (a cross-disciplinary collaboration) will investigate community level factors influencing early childhood developmental outcomes using a mixed methods approach in up to 10 communities across Australia. This will result in a potential set of measures or indicators that reflect communities that are good for children.
Integrated Kids Hubs - Ensuring Equity of Access for Children. The Integrated Kids Hubs - Ensuring Equity of Access for Children project aims to determine if integrated Hubs are effective in increasing access to child and family services for disadvantaged urban and regional families with children aged 3 years and under, thus improving early identification of developmental vulnerability, parental wellbeing and capacity, and addressing unmet psychosocial needs. If these issues are not identified a ....Integrated Kids Hubs - Ensuring Equity of Access for Children. The Integrated Kids Hubs - Ensuring Equity of Access for Children project aims to determine if integrated Hubs are effective in increasing access to child and family services for disadvantaged urban and regional families with children aged 3 years and under, thus improving early identification of developmental vulnerability, parental wellbeing and capacity, and addressing unmet psychosocial needs. If these issues are not identified and addressed early, these children will go on to struggle in school and life. We will use a pragmatic trial design (meaning the research is embedded in our usual practice), determine the social return on investment, and establish what is needed to scale up the Hubs across NSW and Australia.Read moreRead less
Finding meaning in the experience of dementia: The place of spiritual reminiscence work. This project will use spiritual reminiscence work to study the experience of dementia and the spiritual dimension focussing on how people with dementia find meaning and develop coping strategies. Dementia is a significant issue for an ageing society where estimates of prevalence indicate a rise of 254% from 1995-2041. The greatest challenge to people diagnosed with dementia is their search for meaning lead ....Finding meaning in the experience of dementia: The place of spiritual reminiscence work. This project will use spiritual reminiscence work to study the experience of dementia and the spiritual dimension focussing on how people with dementia find meaning and develop coping strategies. Dementia is a significant issue for an ageing society where estimates of prevalence indicate a rise of 254% from 1995-2041. The greatest challenge to people diagnosed with dementia is their search for meaning leading to the development of effective coping strategies as their memory loss and confusion progresses. Outcomes will impact on persons with dementia, staff and carers, with improved quality of life for allRead moreRead less
Opportunity spaces - community engagement in the planning, use and governance of shared school facilities. This project will capitalise on investment across Australia in renewing schools and building community education precincts. The work will illuminate the role played by civic infrastructure in community building, the benefits of coordinating social and educational services, and the potential of schools as learning resources for the whole community.
Creating pathways to child wellbeing in disadvantaged communities. This project aims to test, in nine disadvantaged communities, a model for action that blends new human and digital resources to support respectful, data-driven collaborations between schools, families and community agencies.
The project expects to generate new knowledge in the area of translational prevention science about how to influence risk and protective factors for child wellbeing in a cost-efficient manner and at a scale ....Creating pathways to child wellbeing in disadvantaged communities. This project aims to test, in nine disadvantaged communities, a model for action that blends new human and digital resources to support respectful, data-driven collaborations between schools, families and community agencies.
The project expects to generate new knowledge in the area of translational prevention science about how to influence risk and protective factors for child wellbeing in a cost-efficient manner and at a scale within existing service systems. Project benefits should include a methodology for achieving lasting improvements in child wellbeing, behaviour and school success.
Read moreRead less