Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significanc ....Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significance of this project lies in its innovative sociological approach; expected outcomes include the generation of new knowledge on needs at the end of life that move across contexts and settings. Benefits include provision of findings that will inform social and health policy and practice improvements to enable good deaths.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150100285
Funder
Australian Research Council
Funding Amount
$372,000.00
Summary
Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of infor ....Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of informal care from multi-stakeholder perspectives, providing policy and practice-relevant evidence for better support and understanding of the role and significance of informal care for people approaching the end of life in Australian society.Read moreRead less
Pathways to and through palliative care: a sociological study of patient, carer and clinician experiences at the end-of-life. Palliative care services provide care and support for families, carers and individuals trying to cope with the challenges presented at the end of life. This project will provide critical policy and practice-relevant data in order to improve our understanding of, and support for, the dying process in Australia.
Caring at end of life: understanding the nature and effect of informal community care networks for people dying at home. This project will provide an understanding of the function and purpose of caring networks for people at the end of their life, specifically for people who are dying at home. This understanding will enable the development of communities capacity in addition to informing a national health promotion approach to palliative care.
Community spirit, social transformation, sustainable partnership: community capacity building for community transformations. This partnership is at the forefront of developments in the provision of community services. The project will contribute to a growing international field of research focused on developing integrated frameworks for measuring community wellbeing. The community capacity building approach will serve as a best practice model for other Australian municipalities. The indicators a ....Community spirit, social transformation, sustainable partnership: community capacity building for community transformations. This partnership is at the forefront of developments in the provision of community services. The project will contribute to a growing international field of research focused on developing integrated frameworks for measuring community wellbeing. The community capacity building approach will serve as a best practice model for other Australian municipalities. The indicators are a tool for engaging communities in making informal decisions and developing shared goals; a policy tool for evidence based planning; and a reporting tool to track and communicate progress towards agreed goals and outcomes. The outcomes will be efficient use of available funding for community services and lower cost of provision of social welfare.Read moreRead less
Working from the Ground Up: A Participatory Approach to Community Regeneration in Public Housing Neighbourhoods. This research will discover approaches, strategies and interventions that contribute to sustainable changes in public housing estates. It will trial interventions and develop quantitative tools. The outcomes of the project will include stronger, more cohesive communities, opportunities for residents to actively participate in their communities, and the development of services through ....Working from the Ground Up: A Participatory Approach to Community Regeneration in Public Housing Neighbourhoods. This research will discover approaches, strategies and interventions that contribute to sustainable changes in public housing estates. It will trial interventions and develop quantitative tools. The outcomes of the project will include stronger, more cohesive communities, opportunities for residents to actively participate in their communities, and the development of services through partnerships between the communities and relevant government, non government and private organizations. This will enhance health and wellbeing and increase education and training opportunities for residents. Read moreRead less
Crimes, Places and Communities: A Spatial and Temporal Analysis of Collective Capacity with implications for community-based crime prevention. This project seeks to provide policy makers in Australia with better evidence on which to protect Australia from crime. Our project will provide insights as to how communities might more effectively insulate themselves from crime over time. Our research has the potential to lead the future direction in Australian approaches to community-based crime preven ....Crimes, Places and Communities: A Spatial and Temporal Analysis of Collective Capacity with implications for community-based crime prevention. This project seeks to provide policy makers in Australia with better evidence on which to protect Australia from crime. Our project will provide insights as to how communities might more effectively insulate themselves from crime over time. Our research has the potential to lead the future direction in Australian approaches to community-based crime prevention and crime control programs.
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Opportunity spaces - community engagement in the planning, use and governance of shared school facilities. This project will capitalise on investment across Australia in renewing schools and building community education precincts. The work will illuminate the role played by civic infrastructure in community building, the benefits of coordinating social and educational services, and the potential of schools as learning resources for the whole community.
Communities, trust, governance and partnerships: The role of Local Government in community management and development in areas of social disadvantage. This project is significant as much contemporary social policy is predicated on normative assumptions of 'community' 'trust' 'collective efficacy' 'social capital', which are contested, contextual concepts. Importantly there are differences in meaning and practice of 'community' between areas of advantage and disadvantage. In being based on thes ....Communities, trust, governance and partnerships: The role of Local Government in community management and development in areas of social disadvantage. This project is significant as much contemporary social policy is predicated on normative assumptions of 'community' 'trust' 'collective efficacy' 'social capital', which are contested, contextual concepts. Importantly there are differences in meaning and practice of 'community' between areas of advantage and disadvantage. In being based on these assumptions policy implementation, which increasingly relies on community capacity, infrastructure and human resources, may have the unintended outcome of exacerbating disadvantage. This project examines these contested concepts and explores Local Government's role in creating local partnership options and modes of governance to facilitate equitable outcomes for disadvantaged communitiesRead moreRead less
The social determinants of childhood injury. Child hood injury is a preventable problem of major importance. This project will provide a comprehensive, research-based policy solution that will minimise death and disability among children zero to three years of age.