Discovery Early Career Researcher Award - Grant ID: DE170100414
Funder
Australian Research Council
Funding Amount
$363,000.00
Summary
Ethics and Equity: Implications for health systems research priority-setting. The project aims to develop ethical guidance on engaging research users and beneficiaries in health systems research priority-setting. As a matter of justice, research on health systems should generate knowledge that improves access and affordability of care for disadvantaged groups, but research questions often fail to reflect the major health system issues these groups face and findings are often not used in policy a ....Ethics and Equity: Implications for health systems research priority-setting. The project aims to develop ethical guidance on engaging research users and beneficiaries in health systems research priority-setting. As a matter of justice, research on health systems should generate knowledge that improves access and affordability of care for disadvantaged groups, but research questions often fail to reflect the major health system issues these groups face and findings are often not used in policy and practice. The project will develop ethical guidance on how research users and beneficiaries should be engaged in health systems research priority-setting and benchmarks for achieving such engagement. Ethical guidance is expected to facilitate a rise in research that improves health systems for disadvantaged groups.Read moreRead less
Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all ....Consent in the void: moral, legal and community values in decisions about human biological donations. This project will improve consent procedures for embryo and organ donation. This will increase the autonomy of those consenting, the quality of consent that is given, and increase public trust in the processes of embryo and organ donation. The legal and moral status of the wishes of the newly dead or embryo donors and will be clarified thereby increasing the quality of consent processes for all involved. By including community values in addition to the legal and moral issues, this project will make well-founded recommendations for the development of laws, policies and guidelines in relation to decisions about frozen embryos and the newly dead.Read moreRead less
Expand the capacity of an international multidisciplinary research network focussed on the ethical, legal and social implications of emerging biotechnologies. This project will ensure that Australia plays a central role in international debates and research activities aimed at regulating and facilitating advances in biotechnology. The project will also provide Australian researchers with direct access to key international experts in the field.