Discovery Early Career Researcher Award - Grant ID: DE170100414
Funder
Australian Research Council
Funding Amount
$363,000.00
Summary
Ethics and Equity: Implications for health systems research priority-setting. The project aims to develop ethical guidance on engaging research users and beneficiaries in health systems research priority-setting. As a matter of justice, research on health systems should generate knowledge that improves access and affordability of care for disadvantaged groups, but research questions often fail to reflect the major health system issues these groups face and findings are often not used in policy a ....Ethics and Equity: Implications for health systems research priority-setting. The project aims to develop ethical guidance on engaging research users and beneficiaries in health systems research priority-setting. As a matter of justice, research on health systems should generate knowledge that improves access and affordability of care for disadvantaged groups, but research questions often fail to reflect the major health system issues these groups face and findings are often not used in policy and practice. The project will develop ethical guidance on how research users and beneficiaries should be engaged in health systems research priority-setting and benchmarks for achieving such engagement. Ethical guidance is expected to facilitate a rise in research that improves health systems for disadvantaged groups.Read moreRead less
Commercial risk management in the health environment: exploring the legal and ethical boundaries of consent in genetic diagnostic research. There is little empirical research on consent in clinical research, particularly genetic diagnostic testing, despite its key significance to risk management in medical research practice. This study analyses consent procedures of clinicians and researchers for individual research participants. Key clinicians and Laboratory Heads engaged in genetic diagnostic ....Commercial risk management in the health environment: exploring the legal and ethical boundaries of consent in genetic diagnostic research. There is little empirical research on consent in clinical research, particularly genetic diagnostic testing, despite its key significance to risk management in medical research practice. This study analyses consent procedures of clinicians and researchers for individual research participants. Key clinicians and Laboratory Heads engaged in genetic diagnostic research will be interviewed and consent forms assessed. This will produce identification of trends in consent procedures and baseline information for national studies. The significance is the priority accorded genetic research, the need for adequate risk management in that context and development of optimal consent procedures and policy at State and National levels.Read moreRead less