Establishing Guidelines for Coronial Best Practice Use of Internal Autopsy. Last year in Queensland 2700 Coronial internal autopsies were conducted at a cost of $5.3 million. In addition to the economic cost, other relevant concerns include few qualified personnel, public health risks, and cultural and religious sensitivities associated with internal autopsy. Anecdotal evidence suggests that for a number of these deaths, the internal autopsy was not necessary to establish cause or circumstance ....Establishing Guidelines for Coronial Best Practice Use of Internal Autopsy. Last year in Queensland 2700 Coronial internal autopsies were conducted at a cost of $5.3 million. In addition to the economic cost, other relevant concerns include few qualified personnel, public health risks, and cultural and religious sensitivities associated with internal autopsy. Anecdotal evidence suggests that for a number of these deaths, the internal autopsy was not necessary to establish cause or circumstance of death. The purpose of this research is to create guidelines to enable coroners to weight all sources of evidence before ordering internal autopsies The purpose is to decrease the number (and associated costs, risks and distress to families) of unnecessary internal autopsies being performed without compromising the finding as to cause and circumstance of death.Read moreRead less
Nodal Governance and Human Security. Australia is in a region where a number of countries fail to provide their people with security in basic areas such as health and community security. Understanding the security problems of Australia's neighbours is vital, but not easy. This pathbreaking project will help Australians involved in working with these countries to gain an interrelated understanding of the problems facing our neighbours. The benefits that flow from this include an improved planning ....Nodal Governance and Human Security. Australia is in a region where a number of countries fail to provide their people with security in basic areas such as health and community security. Understanding the security problems of Australia's neighbours is vital, but not easy. This pathbreaking project will help Australians involved in working with these countries to gain an interrelated understanding of the problems facing our neighbours. The benefits that flow from this include an improved planning capacity for dealing with security issues in the region, better use of the resources that we provide, and strengthened relationships with our neighbours. We will do this while placing Australia at the head of an emerging, highly exciting field of study centred on human security.Read moreRead less
Genetic discrimination in Australia: an exploration of the nature and extent of the phenomenon within the legal and social context. This project involves national, groundbreaking research into the newly-emerging phenomenon of genetic discrimination in Australia. Undertaken by a multi-disciplinary, cross-institutional team with a wide range of expertise, this innovative and topical research will investigate genetic discrimination across three key perspectives: consumers, third parties and the le ....Genetic discrimination in Australia: an exploration of the nature and extent of the phenomenon within the legal and social context. This project involves national, groundbreaking research into the newly-emerging phenomenon of genetic discrimination in Australia. Undertaken by a multi-disciplinary, cross-institutional team with a wide range of expertise, this innovative and topical research will investigate genetic discrimination across three key perspectives: consumers, third parties and the legal system. It will advance the existing knowledge base, both nationally and internationally, and establish comprehensive baseline data for further evaluative research. Important outcomes for each of the three sectors will be generated, as well as a comprehensive overview of this important new Australian social issue. Recommendations will inform the development of appropriate law and policy.
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Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions a ....Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions and avoid litigation for doctors and hospitals. The project also aims to improve the quality of the law by resolving legal ambiguity and proposing reforms. This will further enhance the quality of decision-making, and will reduce defensive medicine and the cost of complying with the law, leading to savings in health expenditure.Read moreRead less
Commercial risk management in the health environment: exploring the legal and ethical boundaries of consent in genetic diagnostic research. There is little empirical research on consent in clinical research, particularly genetic diagnostic testing, despite its key significance to risk management in medical research practice. This study analyses consent procedures of clinicians and researchers for individual research participants. Key clinicians and Laboratory Heads engaged in genetic diagnostic ....Commercial risk management in the health environment: exploring the legal and ethical boundaries of consent in genetic diagnostic research. There is little empirical research on consent in clinical research, particularly genetic diagnostic testing, despite its key significance to risk management in medical research practice. This study analyses consent procedures of clinicians and researchers for individual research participants. Key clinicians and Laboratory Heads engaged in genetic diagnostic research will be interviewed and consent forms assessed. This will produce identification of trends in consent procedures and baseline information for national studies. The significance is the priority accorded genetic research, the need for adequate risk management in that context and development of optimal consent procedures and policy at State and National levels.Read moreRead less
Legal and Ethical Preparedness for Pandemic Influenza. Over 40 million people in the world died in the 1918 Influenza pandemic. Any repetition could have devastating social and economic costs for Australia and the Region. Community confidence in quarantine or other restrictions in the medical management of pandemics depends on balancing protection of public health against the rights of citizens to go about their work and daily lives. By studying the adequacy of existing human pandemic influenz ....Legal and Ethical Preparedness for Pandemic Influenza. Over 40 million people in the world died in the 1918 Influenza pandemic. Any repetition could have devastating social and economic costs for Australia and the Region. Community confidence in quarantine or other restrictions in the medical management of pandemics depends on balancing protection of public health against the rights of citizens to go about their work and daily lives. By studying the adequacy of existing human pandemic influenza planning in Australia and the Asian region, this project will contribute to law reform and policy development needed to command community confidence in the ethical and public policy balances embodied in national pandemic plans, and the laws and practices which support them.Read moreRead less
Electronic Health Records: Achieving an Effective and Ethical Legal and Recordkeeping Framework. Health records are essential to efficacious treatment and affect every individual. They are 'socially-critical' communications because the therapeutic relationship between doctor and patient is based on trust. Without any systematic ethical and legal safeguards or recordkeeping framework, the application of new technologies for networking health records lacks social credibility. This multidisciplina ....Electronic Health Records: Achieving an Effective and Ethical Legal and Recordkeeping Framework. Health records are essential to efficacious treatment and affect every individual. They are 'socially-critical' communications because the therapeutic relationship between doctor and patient is based on trust. Without any systematic ethical and legal safeguards or recordkeeping framework, the application of new technologies for networking health records lacks social credibility. This multidisciplinary study will provide a set of principles and standards relating to authenticity, ownership, access, privacy, and confidentiality of doctor-patient communications in a networked environment, which, if implemented, will benefit patients and the medical community thus furthering the development of a more efficacious national health system.Read moreRead less
The ART of making babies: How human embryo research and assisted reproduction are regulated in Australia and New Zealand. Scientific breakthroughs in the past 25 years have made it possible for people to receive assistance to conceive when they would otherwise remain childless. Access to assisted reproductive technologies is governed by different regulatory frameworks in the states and territories of Australia. We will clarify how clinical practice, service delivery and medical research are in ....The ART of making babies: How human embryo research and assisted reproduction are regulated in Australia and New Zealand. Scientific breakthroughs in the past 25 years have made it possible for people to receive assistance to conceive when they would otherwise remain childless. Access to assisted reproductive technologies is governed by different regulatory frameworks in the states and territories of Australia. We will clarify how clinical practice, service delivery and medical research are influenced by the differing regulatory frameworks. The research will be of national significance to policy makers and legislators and to potential beneficiaries of infertility services and will assist communities to understand how and why these important areas of human concern are regulated. Read moreRead less
Substance Use in Prisons and Other Closed Settings: Identifying appropriate and effective legislative frameworks for a harm reduction approach. Influencing laws on drugs in closed settings to reflect public health approaches will directly benefit incarcerated individuals and wider communities in Cambodia and in Australia. Australian Red Cross has a long-standing commitment to improving vulnerable peoples' lives as well as a deep-seated community identity; it will facilitate the implementation o ....Substance Use in Prisons and Other Closed Settings: Identifying appropriate and effective legislative frameworks for a harm reduction approach. Influencing laws on drugs in closed settings to reflect public health approaches will directly benefit incarcerated individuals and wider communities in Cambodia and in Australia. Australian Red Cross has a long-standing commitment to improving vulnerable peoples' lives as well as a deep-seated community identity; it will facilitate the implementation of its research findings through its prisons programs. Collaborations with AusAID-funded HIV prevention, substance abuse and criminal justice reform initiatives (including HIV/AIDS Asia Regional Program (HAARP) and Cambodia Criminal Justice Assistance Program (CCJAP)) will strengthen Australia's contribution to civil society and public health in Cambodia, and simultaneously reinforce Australia's reputation as a leader on substance use and harm reduction issues.Read moreRead less