The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the ....The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the quality of life for disabled and nondisabled family members, and ensure a more efficient use of public funding. Our findings will serve as a model for managing the life-long care of people with cerebral palsy and other severe, chronic disabilities, throughout Australia and overseas.Read moreRead less
Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sou ....Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sound instrument that will identify families struggling to care for their children at home, and a family and practitioner guide of innovative solutions to maintaining family-based placements.
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Medical Signbank: sign language planning and development in interpreter-mediated medical and mental health care delivery for deaf Australians. This collaboration between academic linguists, interpreter service providers, health care providers, sign language interpreters, and the Deaf community will improve the recent initiatives to give deaf people equity in their access to health care services. For the first time, deaf people are able to access medical services early and effectively, improving ....Medical Signbank: sign language planning and development in interpreter-mediated medical and mental health care delivery for deaf Australians. This collaboration between academic linguists, interpreter service providers, health care providers, sign language interpreters, and the Deaf community will improve the recent initiatives to give deaf people equity in their access to health care services. For the first time, deaf people are able to access medical services early and effectively, improving treatment outcomes and, importantly, preventing conditions occurring in the first place or allowing early intervention before they become much more serious and costly to the individual and the community. This project will therefore be of national benefit, as all stakeholders from all over Australia will be able to access the Medical Signbank resource.Read moreRead less
Post retirement support solutions for people with intellectual disabilities and their parents/carers. The current generation is the first to contain a substantial number of people with intellectual disabilities who have survived to old age. Policy makers have yet to focus on their wellbeing following retirement from supported employment. Evidence cited by agencies such as Centacare, the Industry Partner, indicates that these older people and their ageing parents experience severe disadvantage an ....Post retirement support solutions for people with intellectual disabilities and their parents/carers. The current generation is the first to contain a substantial number of people with intellectual disabilities who have survived to old age. Policy makers have yet to focus on their wellbeing following retirement from supported employment. Evidence cited by agencies such as Centacare, the Industry Partner, indicates that these older people and their ageing parents experience severe disadvantage and worry about retirement. The project aims to redress this situation by investigating ways of preparing people for retirement and mechanisms for enabling supported employment agencies to provide services and supports that optimise post retirement wellbeing.Read moreRead less