Improved Support For Regional And Remote Paediatric Oncology Families: A Randomised Controlled Trial Of Videotelephony
Funder
National Health and Medical Research Council
Funding Amount
$304,843.00
Summary
Childhood cancer presents a major life stressor for the entire family. Significant changes to the everyday lives of families, practically, socially and emotionally cause major disruption. There is evidence that this disruption results in isolation and poor communication between family members, anxiety, low self-esteem and school problems for siblings and anxiety, post-traumatic stress symptoms and risk of depression for parents. Providing ongoing support to these families is an essential part of ....Childhood cancer presents a major life stressor for the entire family. Significant changes to the everyday lives of families, practically, socially and emotionally cause major disruption. There is evidence that this disruption results in isolation and poor communication between family members, anxiety, low self-esteem and school problems for siblings and anxiety, post-traumatic stress symptoms and risk of depression for parents. Providing ongoing support to these families is an essential part of care. The Royal Children's Hospital (RCH) Paediatric Oncology Service in Brisbane is the major tertiary paediatric referral centre for Queensland, northern New South Wales and the southwest Pacific. A multidisciplinary team of medical, nursing, and allied health professionals provides care and support to children with cancer, as well as their families. Each year around 100 newly diagnosed patients are cared for. Around 60% of the families cared for by the service live in regional and remote areas. There are a number of challenges which inhibit the equitable provision of specialist health services to these areas including availability of health care professionals and accessibility due to distance, time, cost and transport. For paediatric oncology families, opportunities to receive support are limited. One possible solution is the use of online support mechanisms, such as videotelephony, to facilitate the provision of much needed support to patients, parents, siblings and the family as a whole. The objective of this research is to see if videotelephony can be used to support regional and remote families of the Royal Children's Hospital Paediatric Oncology Service providing indizidualised communication, education, counselling and monitoring. This will present a new and innovative use of videophone technology as well as a new method for supporting regional and remote oncology patients and their families.Read moreRead less
Enhancing wellbeing over the family life course. This project aims to investigate the impact of family life transitions, such as relationship formation and dissolution or births, on wellbeing over the life course. It will do this by analysing data following people over time and will provide information about the negative and positive effects of family transitions for wellbeing, track changes in wellbeing before, during and after transitions, and highlight the intersections of the family life cou ....Enhancing wellbeing over the family life course. This project aims to investigate the impact of family life transitions, such as relationship formation and dissolution or births, on wellbeing over the life course. It will do this by analysing data following people over time and will provide information about the negative and positive effects of family transitions for wellbeing, track changes in wellbeing before, during and after transitions, and highlight the intersections of the family life course with gender, age and socioeconomic status. This will considerably enhance understandings of wellbeing over the family life course, providing insights for targeted policies and interventions to improve health and wellbeing.Read moreRead less
Indigenous Mental Health Model Of Care: RCT Based On A Trans-diagnostic CBT Program Co-designed With Community
Funder
National Health and Medical Research Council
Funding Amount
$996,217.00
Summary
We propose to develop an Indigenous Model of Mental Health Care (IMMHC) that encompasses psychological therapy and cultural healing practices developed in consultation with local, participating Indigenous communities, that will for the first time treat highly prevalent mood and anxiety disorders in Indigenous Australians.
Keeping my place in the community: achieving successful ageing-in-place for people with intellectual and developmental disabilities. This project, in partnership with aged care and disability agencies across two states, aims to examine ways the aged care, social and health needs of people with intellectual and developmental disabilities may be met in rural and urban settings. It will explore mechanisms that will lead to a better integration of the aged care and disability sectors.
Living Alone in Australia Project (LAAP). This study investigates one aspect of the changing nature of Australia's social fabric. It asks whether the sharp rise in living alone reflects a breakdown in Australia's social fabric or simply marks a change in the way in which the fabric is woven. Living alone has important implications for social policy, service provision and housing. But before these implications are identified we need a much better understanding of who lives alone and what living ....Living Alone in Australia Project (LAAP). This study investigates one aspect of the changing nature of Australia's social fabric. It asks whether the sharp rise in living alone reflects a breakdown in Australia's social fabric or simply marks a change in the way in which the fabric is woven. Living alone has important implications for social policy, service provision and housing. But before these implications are identified we need a much better understanding of who lives alone and what living alone means for people in terms of their social ties. By understanding the causes and consequences of the increasing popularity of living alone the study will help identify those who are at ?risk? and thus assist with effective targeting of supports and interventions.Read moreRead less
Alcohol’s harm to others: patterns, costs, disparities and precipitants. This project aims to generate understanding of the magnitude, character, economic burden, disparities and precipitants of occurrence of alcohol’s harm to others across Australia, using a national survey, crime, community services and health data and qualitative interviews. The project outcome will be a robust current evidence base for our partners, government and Australian society to underpin advocacy, policy and planning, ....Alcohol’s harm to others: patterns, costs, disparities and precipitants. This project aims to generate understanding of the magnitude, character, economic burden, disparities and precipitants of occurrence of alcohol’s harm to others across Australia, using a national survey, crime, community services and health data and qualitative interviews. The project outcome will be a robust current evidence base for our partners, government and Australian society to underpin advocacy, policy and planning, aimed at reducing alcohol-related harm and suffering.Read moreRead less
Physical activity in the construction of occupation for primary school aged children. Children become less physically active as they make the transition from childhood to adolescence. The physical, medical, social and concomitant psychological sequela of inactivity is of major concern to the community. The aim of this study is to map change in physical activity patterns in an identified group of 315 children currently aged between 6 and 7 years of age. Studies with children in their primary sc ....Physical activity in the construction of occupation for primary school aged children. Children become less physically active as they make the transition from childhood to adolescence. The physical, medical, social and concomitant psychological sequela of inactivity is of major concern to the community. The aim of this study is to map change in physical activity patterns in an identified group of 315 children currently aged between 6 and 7 years of age. Studies with children in their primary school years and of a longitudinal nature such as this one have not to date been undertaken. The study will utilize quantitative and qualitative methodolgies to: (a)describe change,(b) determine the primary socioeconomical, environmental, child and family level factors which explain a decrease in physical activity, and (c) try to understand at the level of child and family what has driven these changes. The outcomes of this study will enable researchers to move forward in developing targeted interventions appropriately at this important age group.Read moreRead less
Whole-of-family treatment of trauma in African refugees: an individual, family and community approach. This project will strengthen Australian social, family and community life for refugee and humanitarian entrants by addressing individual, family and community impacts of torture and trauma. The project's uniqueness arises from its specific emphasis on individual cultural sensitivity, using counselling methods consistent with a refugee world view.
The evaluation of a parenting intervention to prevent adverse developmental outcomes for children following family breakdown. This project will be a major step forward in providing an evidence-base for interventions with divorced parents in Australia. Family Transitions Triple P - Positive Parenting Program is a theoretically based intervention that addresses the Australian Government's emphasised need of providing families with strategies to resolve relationship disputes and reduce the emotion ....The evaluation of a parenting intervention to prevent adverse developmental outcomes for children following family breakdown. This project will be a major step forward in providing an evidence-base for interventions with divorced parents in Australia. Family Transitions Triple P - Positive Parenting Program is a theoretically based intervention that addresses the Australian Government's emphasised need of providing families with strategies to resolve relationship disputes and reduce the emotional costs to families experiencing divorce. Once evaluated for effectiveness, the collaboration of this project with Relationships Australia will enable the program to be readily accessible to the divorced parents in Australia.Read moreRead less