The emotional and social burden of caring for a young child with complex health needs. The National Agenda for Early Childhood and the Stronger Families and Community Strategy provide a framework for achieving efficient and effective outcomes in early childhood. This project will contribute to those strategies by gaining an understanding of the currently unknown issues faced by the group of families of young infants and children with complex health needs in a variety of geographic, community and ....The emotional and social burden of caring for a young child with complex health needs. The National Agenda for Early Childhood and the Stronger Families and Community Strategy provide a framework for achieving efficient and effective outcomes in early childhood. This project will contribute to those strategies by gaining an understanding of the currently unknown issues faced by the group of families of young infants and children with complex health needs in a variety of geographic, community and service settings, and the government supported services required. The identification of risk and resilience factors will enable the early detection of children at 'high-risk' and provide the opportunity to implement preventative and early intervention programs.Read moreRead less
The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the ....The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the quality of life for disabled and nondisabled family members, and ensure a more efficient use of public funding. Our findings will serve as a model for managing the life-long care of people with cerebral palsy and other severe, chronic disabilities, throughout Australia and overseas.Read moreRead less