We plan to collect health information from Australian patients with arthritis to monitor the benefits and safety of new treatments. All patients being treated with the new injectable biologic agents and other patients taking conventional drugs will be invited to take part in the follow up program. We will measure the impact of arthritis on quality of life and physical function and the long-term effects of all arthritis drugs. This will be of immense value to the Australian community as this data ....We plan to collect health information from Australian patients with arthritis to monitor the benefits and safety of new treatments. All patients being treated with the new injectable biologic agents and other patients taking conventional drugs will be invited to take part in the follow up program. We will measure the impact of arthritis on quality of life and physical function and the long-term effects of all arthritis drugs. This will be of immense value to the Australian community as this data are not routinely available from any other source. It will help rheumatologists and patients make the best decisions regarding long-term arthritis treatments.Read moreRead less
An intelligent, user-sensitive portal to breast cancer knowledge online. Research indicates dissatisfaction with the quality of information provision amongst women with breast cancer and their families, particularly in rural and regional areas. Information and decision-support needs vary depending on disease stage, education, age, location, and ethnicity. Customised, in-time information access is critically important to BreastCare Victoria and the Breast Cancer Action Group as it impacts signifi ....An intelligent, user-sensitive portal to breast cancer knowledge online. Research indicates dissatisfaction with the quality of information provision amongst women with breast cancer and their families, particularly in rural and regional areas. Information and decision-support needs vary depending on disease stage, education, age, location, and ethnicity. Customised, in-time information access is critically important to BreastCare Victoria and the Breast Cancer Action Group as it impacts significantly on health and life-style decisions. This joint project analyses user needs, assesses and describes resources in user-sensitive ways, and designs and prototypes an intelligent portal that provides differentiated access to breast cancer resources online. It also advances general understandings of intelligent information provision.
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Optimising the Utility of Injury Surveillance Systems for Injury Prevention in Active Populations. Promotion of physical activity is a key national health priority and a major focus for the Australian Defence Force to achieve and maintain operational fitness. Unfortunately, these goals are associated with the negative effects of increased injury occurrence and substantial related costs. Civilian and military injury surveillance systems inform injury prevention priorities and interventions but re ....Optimising the Utility of Injury Surveillance Systems for Injury Prevention in Active Populations. Promotion of physical activity is a key national health priority and a major focus for the Australian Defence Force to achieve and maintain operational fitness. Unfortunately, these goals are associated with the negative effects of increased injury occurrence and substantial related costs. Civilian and military injury surveillance systems inform injury prevention priorities and interventions but research is required to maximise their performance and utility. The project aims to 1) determine the extent to which current systems meet user requirements 2) assess utility and reliability of these systems specifically for active populations and 3) develop recommendations for future systems development and improved user application.Read moreRead less
Smart Information Portals: Meeting knowledge and decision support needs of health care consumers for quality online information. Smart information portals, tailored to the communities needs, will contribute to emerging national information infrastructure for consumer focused information provision. They will support government initiatives promoting the role of online access to reliable, quality information in achieving good health, patient empowerment, participation in informed decision making, s ....Smart Information Portals: Meeting knowledge and decision support needs of health care consumers for quality online information. Smart information portals, tailored to the communities needs, will contribute to emerging national information infrastructure for consumer focused information provision. They will support government initiatives promoting the role of online access to reliable, quality information in achieving good health, patient empowerment, participation in informed decision making, self-management, and greater treatment compliance. Through the National Research Priority 3 goal of smart information use, the project addresses Priority 2 goals relating to ageing well; ageing productively; preventive health care; and strengthening the social and economic fabric to enable Australians to make choices that lead to healthy, productive and fulfilling lives.Read moreRead less
Social network sites for ambivalent socialisers: the case of smoking cessation. The aim of this project is to understand the potential of electronically-mediated engagement to support groups of ambivalent socialisers, and through this develop and evaluate new approaches to the application of social network technologies to smoking cessation.
Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine sa ....Can and should we link data at a national level? Vaccine safety surveillance: A case study. This project provides many benefits for the community, exploring the legal and ethical issues around consent for data linkage, convening Citizens' Juries to weigh the evidence and make recommendations. It addresses National Research Priorities: Promoting and Maintaining Good Health and Safeguarding Australia as well as National Collaborative Research Infrastructure Strategy priorities. It uses vaccine safety surveillance as a case study to evaluate the effectiveness of data linkage (through linking Commonwealth immunisation data to state hospital data) and the methodologies and lessons learnt from cross jurisdictional data linkage can be transferred to other areas. Read moreRead less
Linkage Infrastructure, Equipment And Facilities - Grant ID: LE210100137
Funder
Australian Research Council
Funding Amount
$881,758.00
Summary
Australian Environmental Specimen Bank: advancing specimen bank capability. The aim of this LIEF is to advance Australia’s specimen banking capabilities through a new, enhanced national facility, the Australian Environmental Specimen Bank (AESB). The AESB would be founded on a unique current archive of human and environmental samples established by the partners to the LIEF. Importantly, the AESB would be managed as a nationally available (to all public sector researchers), operationally self-fun ....Australian Environmental Specimen Bank: advancing specimen bank capability. The aim of this LIEF is to advance Australia’s specimen banking capabilities through a new, enhanced national facility, the Australian Environmental Specimen Bank (AESB). The AESB would be founded on a unique current archive of human and environmental samples established by the partners to the LIEF. Importantly, the AESB would be managed as a nationally available (to all public sector researchers), operationally self-funded resource for integrated exposure research into the future. The archive is expected to support longitudinal and cross-sectional studies to assess trends in exposure to chemical and biological hazards in the Australian population, identify emerging hazards, and provide a scientific basis for policy and regulatory actions.Read moreRead less
From data to action: a new process for developing injury countermeasures. This project aims to understand how reporting systems can improve workplace safety. Workplace injury affects over 600 000 Australian workers per year at a cost of approximately $60 billion. Although the introduction of incident reporting systems has enabled organisations to better understand the causes of injuries, how to translate this knowledge into effective countermeasures remains ambiguous. Moreover, it is not clear w ....From data to action: a new process for developing injury countermeasures. This project aims to understand how reporting systems can improve workplace safety. Workplace injury affects over 600 000 Australian workers per year at a cost of approximately $60 billion. Although the introduction of incident reporting systems has enabled organisations to better understand the causes of injuries, how to translate this knowledge into effective countermeasures remains ambiguous. Moreover, it is not clear whether adopting incident reporting systems actually leads to a safety benefit. This research intends to tackle these critical knowledge gaps by developing, implementing, and testing a process for translating incident reporting system outputs into appropriate and effective injury countermeasures, and then evaluating the safety effects of adopting the new incident reporting and learning cycle.Read moreRead less
Enhancing patient management and clinical systems in hospital ward settings using mobile, wireless technologies. Wireless networks, hand held devices and associated applications are key emerging technologies. This project will investigate the implementation of wireless devices and applications for patient administration at Southern Health in two ward settings (neurology and neurosurgery) at Monash Medical Centre. A wireless infrastructure is being installed and clinical staff will be able to c ....Enhancing patient management and clinical systems in hospital ward settings using mobile, wireless technologies. Wireless networks, hand held devices and associated applications are key emerging technologies. This project will investigate the implementation of wireless devices and applications for patient administration at Southern Health in two ward settings (neurology and neurosurgery) at Monash Medical Centre. A wireless infrastructure is being installed and clinical staff will be able to conduct their rounds with notebook computers or PDAs at the patients' bedside. The research team will assess the acceptance of the new devices and applications by nursing and medical staff. Outcomes from the project will include a set of guidelines and techniques for introducing and managing technology-enhanced patient administration and clinical systems.Read moreRead less