We plan to collect health information from Australian patients with arthritis to monitor the benefits and safety of new treatments. All patients being treated with the new injectable biologic agents and other patients taking conventional drugs will be invited to take part in the follow up program. We will measure the impact of arthritis on quality of life and physical function and the long-term effects of all arthritis drugs. This will be of immense value to the Australian community as this data ....We plan to collect health information from Australian patients with arthritis to monitor the benefits and safety of new treatments. All patients being treated with the new injectable biologic agents and other patients taking conventional drugs will be invited to take part in the follow up program. We will measure the impact of arthritis on quality of life and physical function and the long-term effects of all arthritis drugs. This will be of immense value to the Australian community as this data are not routinely available from any other source. It will help rheumatologists and patients make the best decisions regarding long-term arthritis treatments.Read moreRead less
A novel cooperative global information system for healthcare. This project will develop a global model for healthcare based on the groundbreaking Protocol Hypothesis Testing (PHT) system, allowing expert groups of clinicians to create and share knowledge across organizations. The PHT is a unique functioning knowledge management system that allows clinicians to record patient and treatment data as it is generated in clinical practice and applies scientific methods to generate clinical knowledge, ....A novel cooperative global information system for healthcare. This project will develop a global model for healthcare based on the groundbreaking Protocol Hypothesis Testing (PHT) system, allowing expert groups of clinicians to create and share knowledge across organizations. The PHT is a unique functioning knowledge management system that allows clinicians to record patient and treatment data as it is generated in clinical practice and applies scientific methods to generate clinical knowledge, all in real-time. The project will develop and test a framework for the PHT system to be used cooperatively by expert groups across virtual organizations, refining the PHT system in the process.Read moreRead less
Introducing computer-based documentation to Residential Aged Care: a multi-method evaluation of success. Improvements to quality and use of evidence-based methods in residential aged-care are restricted due to the very slow adoption of electronic information systems. This research will provide key investors, government, aged care providers and IT vendors, with tools to measure success in introducing IT into this sector. The project will create a platform with the national peak body, to dissemina ....Introducing computer-based documentation to Residential Aged Care: a multi-method evaluation of success. Improvements to quality and use of evidence-based methods in residential aged-care are restricted due to the very slow adoption of electronic information systems. This research will provide key investors, government, aged care providers and IT vendors, with tools to measure success in introducing IT into this sector. The project will create a platform with the national peak body, to disseminate lessons in successful implementation of computerised systems in residential aged-care, based on studies in two states. The studies will also benefit the international community researching technology adoption, by extending its boundary condition to a novel setting.Read moreRead less
A PDA (Personal Digital Assistant) based Point of Care (POC) e-Health Solution for Ambulatory Care Services. The proposed PDA based POC system will provide for collection, delivery and exchange of timely information at point of care. The advantage of such a system will be its high mobility and flexibility matching complex healthcare workflow requirements. Through a prototype development for Ambulatory Care Services generic reusable and scalable components will be designed. The prototype will pr ....A PDA (Personal Digital Assistant) based Point of Care (POC) e-Health Solution for Ambulatory Care Services. The proposed PDA based POC system will provide for collection, delivery and exchange of timely information at point of care. The advantage of such a system will be its high mobility and flexibility matching complex healthcare workflow requirements. Through a prototype development for Ambulatory Care Services generic reusable and scalable components will be designed. The prototype will provide an immediate solution to the problem of improving workflow and work processes within Ambulatory Care services and delivery more efficient healthcare. The development of reusable and scalable components will mean that Ambulatory Care Services will have an application that is technology independent and thus allow new technologies to be "plugged in" as they become available and other mobile healthcare community workers will be able to utilize the components for applications of PDAs at POC.Read moreRead less
Real-time Surveillance For The Early Detection Of E-health Related Adverse Events
Funder
National Health and Medical Research Council
Funding Amount
$311,860.00
Summary
Health care delivery has become increasingly dependent on information technology. There is growing concern about the risk of harm caused by e-health technology. Current methods for error detection are minimal, and healthcare software remains largely unregulated. This research aims to develop innovative surveillance technologies to provide real-time monitoring and to facilitate early detection of e-health generated adverse events, as a critical step to improve the safety of e-health technology.
An intelligent, user-sensitive portal to breast cancer knowledge online. Research indicates dissatisfaction with the quality of information provision amongst women with breast cancer and their families, particularly in rural and regional areas. Information and decision-support needs vary depending on disease stage, education, age, location, and ethnicity. Customised, in-time information access is critically important to BreastCare Victoria and the Breast Cancer Action Group as it impacts signifi ....An intelligent, user-sensitive portal to breast cancer knowledge online. Research indicates dissatisfaction with the quality of information provision amongst women with breast cancer and their families, particularly in rural and regional areas. Information and decision-support needs vary depending on disease stage, education, age, location, and ethnicity. Customised, in-time information access is critically important to BreastCare Victoria and the Breast Cancer Action Group as it impacts significantly on health and life-style decisions. This joint project analyses user needs, assesses and describes resources in user-sensitive ways, and designs and prototypes an intelligent portal that provides differentiated access to breast cancer resources online. It also advances general understandings of intelligent information provision.
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Spatial analysis of a linked environmental, health and social data base. Extensive environmental, health and socio-demographic data are routinely collected by various agencies throughout Australia. To date, it has been difficult to link separate databases and investigate possible associations between the different parameters within them. In this proposal we plan to link routinely collected health, environment and socio-demographic data from a number of databases. We then plan to develop tools fo ....Spatial analysis of a linked environmental, health and social data base. Extensive environmental, health and socio-demographic data are routinely collected by various agencies throughout Australia. To date, it has been difficult to link separate databases and investigate possible associations between the different parameters within them. In this proposal we plan to link routinely collected health, environment and socio-demographic data from a number of databases. We then plan to develop tools for geo-referencing the data. Finally we plan to perform spatial analysis of the linked data, specifically investigating associations between environmental and social factors and childhood leukaemia, deliberate self harm and adverse birth outcomes. Linking separate databases and performing spatial analysis of georeferenced data will substantially improve the quality of public health surveillance and research in NSW. In addition, it will enable more detailed analysis of the effects of environmental exposures on health, using routine data.Read moreRead less
Special Research Initiatives - Grant ID: SR0567386
Funder
Australian Research Council
Funding Amount
$98,000.00
Summary
Mechanisms for Ultra-secure Access to Large Repositories of Sensitive Data over the Grid. Large repositories of data that are typically geographically distributed and are subject to varying degrees of legal and ethical constraints are not available for open scientific research due to the sensitive and private nature of the information they contain, e.g. personal health records offer significant value for medical research, but are not readily available due to privacy legislation and the requireme ....Mechanisms for Ultra-secure Access to Large Repositories of Sensitive Data over the Grid. Large repositories of data that are typically geographically distributed and are subject to varying degrees of legal and ethical constraints are not available for open scientific research due to the sensitive and private nature of the information they contain, e.g. personal health records offer significant value for medical research, but are not readily available due to privacy legislation and the requirement to maintain end-user’s trust in healthcare information system. This project will build a demonstrator, based upon advanced cryptographic and information research and technologies to provide ultra-secure and sanitized access to this data via a data network grid.Read moreRead less
Optimising the Utility of Injury Surveillance Systems for Injury Prevention in Active Populations. Promotion of physical activity is a key national health priority and a major focus for the Australian Defence Force to achieve and maintain operational fitness. Unfortunately, these goals are associated with the negative effects of increased injury occurrence and substantial related costs. Civilian and military injury surveillance systems inform injury prevention priorities and interventions but re ....Optimising the Utility of Injury Surveillance Systems for Injury Prevention in Active Populations. Promotion of physical activity is a key national health priority and a major focus for the Australian Defence Force to achieve and maintain operational fitness. Unfortunately, these goals are associated with the negative effects of increased injury occurrence and substantial related costs. Civilian and military injury surveillance systems inform injury prevention priorities and interventions but research is required to maximise their performance and utility. The project aims to 1) determine the extent to which current systems meet user requirements 2) assess utility and reliability of these systems specifically for active populations and 3) develop recommendations for future systems development and improved user application.Read moreRead less