Psychosocial and economic impacts of rare diseases on Australian children, families and health professionals. Rare childhood diseases have enormous impacts on children and families; health services, and health professionals. This project will enable Australia to lead the international research effort by using a coordinated approach to study the impacts of rare diseases in order to improve psychosocial, health and economic outcomes for children and families.
Tracking blood and blood products for a healthy start to life. This project will aim to coalesce multiple data sources to track blood and blood products from supply to recipient and improve safe and appropriate blood product transfusions for mothers and newborns. Tracking blood will assist in early identification of adverse outcomes. Identification of at-risk women and babies will allow early prevention and treatment.
Improving the participation of young people with chronic illness in triadic medical discussions about their health. This research will identify key strategies for empowering young people and improving their participation in medical communication about chronic illness. Project outcomes will include the development of guidelines and educational resources to support young people, parents and doctors to achieve open, inclusive communication in medical settings.
Towards improved communication for medication safety: addressing the complexities of managing medications in hospitalised children. This study considers how health professionals, children and family members communicate about the management of medications in hospital. Comprehensive insights into the complexities involving communication processes will inform policies and programs directed at promoting and maintaining optimal management of medications in hospitalised children.