A Longitudinal Study Of Psychopathology In People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$999,803.00
Summary
This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combina ....This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combination of questionnaire survey and in depth interviews of the young adults and their families or carers to track the course of their mental health. The study commenced in 1990 with nearly 1000 young people with ID aged 4-18 years and their progress has been reviewed every 2-3 years in over 75% of the original group. During the next 5 years we plan to follow their mental health during the critical stage of young adult life. During this time there is the greatest risk of mental illnesses such as depression and schizophrenia and the stresses of adjusting to new daily occupations, independent living or residential care and social contact away from the family. We will be able to study the specific emotional and behavioural problems faced by young adults with the main known causes of ID such as Down, Fragile X, Prader Willi and William Syndromes, as well as those who have autism. The great benefit of a long term follow up study is that it allows us to study the links between earlier family environmental, psychological and biological factors and subsequent mental health problems. We can also demonstrate the impact that mental illness in a young person with ID has on the family and parental mental health. The findings have implications for better diagnosis, improved care and management, early intervention and prevention of these common severe and under recognized mental health problems in this disadvantaged group of young Australians and their families and carers.Read moreRead less
Cultural Collections, Creators and Copyright: Museums, Galleries, Libraries and Archives and Australia's Digital Heritage. This project investigates current and emerging ways of using digital collections in museums, galleries, libraries and archives, in light of copyright law and the interests of creators. It serves the strong public interest in facilitating digital access to collections while efficiently managing copyright. Exploiting the potential of digital media and maximising Australia's cr ....Cultural Collections, Creators and Copyright: Museums, Galleries, Libraries and Archives and Australia's Digital Heritage. This project investigates current and emerging ways of using digital collections in museums, galleries, libraries and archives, in light of copyright law and the interests of creators. It serves the strong public interest in facilitating digital access to collections while efficiently managing copyright. Exploiting the potential of digital media and maximising Australia's creative capability both depend on providing adequate incentives for content production while granting access to creative material as a resource for new production. The project will assist Australia better manage its digital cultural collections and balance the interests of creators, institutions and public accessibility.Read moreRead less
Unlocking IP - Expanding public rights and the public domain in Australian copyright. This research investigates how Australia's digital commons, comprising both the public domain and public rights created by open content and open software licensing, can be expanded and protected. It focuses on 'self help' actions within the existing statutory context, in Australia's distinct legal and cultural context, and on comprehensiveness. Its significance is that healthy commons-based production of inform ....Unlocking IP - Expanding public rights and the public domain in Australian copyright. This research investigates how Australia's digital commons, comprising both the public domain and public rights created by open content and open software licensing, can be expanded and protected. It focuses on 'self help' actions within the existing statutory context, in Australia's distinct legal and cultural context, and on comprehensiveness. Its significance is that healthy commons-based production of information is essential to Australia as an innovative country and a democracy. The principal outcomes will be better understood and more efficient public rights licences, incentives to copyright owners to create them, and technical aids to allow users to find commons content.Read moreRead less
Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national p ....Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national policy aspirations for people with disability of rights, choice, inclusion and independence. Using social geography and recognition theory, the project expects to deliver new understanding and improved practice around how paid support relationships can foster mutual care, respect and value at a critically important time in young people’s lives.Read moreRead less
Economic impacts of disease on older workers: Costs to government and individuals and opportunities for intervention. With an ageing workforce, Australia is at risk of having an inadequate workforce to ensure economic growth and to maintain sufficient taxation revenue to support future needs.
This project will provide fill substantial gaps in the Australian evidence the health conditions that keep older workers out of the labour market and that diminish their own immediate and long-term livi ....Economic impacts of disease on older workers: Costs to government and individuals and opportunities for intervention. With an ageing workforce, Australia is at risk of having an inadequate workforce to ensure economic growth and to maintain sufficient taxation revenue to support future needs.
This project will provide fill substantial gaps in the Australian evidence the health conditions that keep older workers out of the labour market and that diminish their own immediate and long-term livings standards and reduce funds available to government. We will address one of the most significant issues resulting fundamental changes to the demography of the Australian labour market and one is regularly raised by the Prime Minister and Treasurer in their speeches following the Intergenerational Report.Read moreRead less
Special Research Initiatives - Grant ID: SR0354839
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
Transforming Knowledge Spaces: Open Technologies for Research Collaboration and Research Communication
. Technology has the potential to transform the means for scholarly collaboration and communication. Our proposal will achieve this potential, by deploying open source infrastructures to create new communication platforms. The Initiative will itself use collaborative writing systems to construct and energise the Network, which will match researchers requiring these new technologies with thos ....Transforming Knowledge Spaces: Open Technologies for Research Collaboration and Research Communication
. Technology has the potential to transform the means for scholarly collaboration and communication. Our proposal will achieve this potential, by deploying open source infrastructures to create new communication platforms. The Initiative will itself use collaborative writing systems to construct and energise the Network, which will match researchers requiring these new technologies with those who have the skills to build them. The outcomes will be an increase in the efficiency of traditional research collaborations as well as new kinds of collaboration and communication, for researchers and consumers of research across a range of disciplines.Read moreRead less
Testing trade mark law's image of the consumer. An effective trade mark law is vital both to protect consumers and to allow businesses to build brand recognition. This project seeks to put Australian trade mark law on a firmer empirical footing by bringing together experts from psychology, law and marketing to test the law’s assumptions against actual consumer responses.
The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disab ....The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disability and their families. Family impacts can include significant loss of income as parents may have to cease employment to care for their young adult who has limited employment or day placement options. Gaining the knowledge to minimise the disruption to family life, which often occurs at this time of transition, will lead to strengthening Australia's social and economic fabric.Read moreRead less
Improving employment outcomes for Australians with disability. This project aims to provide evidence about how to improve employment outcomes for people with disability. Nearly one in five adult Australians have a disability and just over half of these are in the labour force; a modest increase in employment rates will have significant social and economic benefits for people with disability and society. By collecting longitudinal quantitative (survey) and qualitative (interview) data at three ti ....Improving employment outcomes for Australians with disability. This project aims to provide evidence about how to improve employment outcomes for people with disability. Nearly one in five adult Australians have a disability and just over half of these are in the labour force; a modest increase in employment rates will have significant social and economic benefits for people with disability and society. By collecting longitudinal quantitative (survey) and qualitative (interview) data at three time points from over 1500 jobseekers with disability, critical information should be gained about how the characteristics of employment services, workplaces and jobseekers contribute to sustainable, meaningful employment for people with disability.Read moreRead less