Developing an Integrative Active Ageing Model for Policy Makers and Service Providers to Support Older People with Lifelong Intellectual Disability. 'Active ageing' is increasingly gaining international currency and it underpins Australia's national focus on healthy ageing. However, its meaning for older people with intellectual disability, who represent about 0.13% of Australia's older population, is unclear, as little is known about the impact of ageing upon this group. This exciting resear ....Developing an Integrative Active Ageing Model for Policy Makers and Service Providers to Support Older People with Lifelong Intellectual Disability. 'Active ageing' is increasingly gaining international currency and it underpins Australia's national focus on healthy ageing. However, its meaning for older people with intellectual disability, who represent about 0.13% of Australia's older population, is unclear, as little is known about the impact of ageing upon this group. This exciting research project aims to address these knowledge gaps through a series of case studies comprising key stakeholder groups in rural and urban Victoria and Queensland. An Integrative Model of Active Ageing for policy makers and service providers will be developed to facilitate the planning and appropriate distribution of resources for this population. Read moreRead less
Support services for people with intellectual disability: the cost of meeting and not meeting the need. Presently, governments in Australia operate in the absence of rigorous empirical data on the real cost of providing and not providing the support that people with intellectual disability need in order to participate in the life of our community. This research will provide unique information which will be of value to governments as they assess policy frameworks and budget priorities associate ....Support services for people with intellectual disability: the cost of meeting and not meeting the need. Presently, governments in Australia operate in the absence of rigorous empirical data on the real cost of providing and not providing the support that people with intellectual disability need in order to participate in the life of our community. This research will provide unique information which will be of value to governments as they assess policy frameworks and budget priorities associated with the provision of support services that people with intellectual disability and their families need. The contribution this research will make to government decision making will ultimately benefit all people with intellectual disability, their families and our community.Read moreRead less
Self Advocacy and Inclusion: What Can be Learned from Speaking Up. Despite substantial effort and the closure of large institutions, research shows that people with intellectual disabilities in Australia remain marginalised in the community. Developments internationally indicate that much can be learned about the links between self advocacy and accomplishing national policy priorities for social inclusion. An independent voice, developing confidence and securing rights, all features of self advo ....Self Advocacy and Inclusion: What Can be Learned from Speaking Up. Despite substantial effort and the closure of large institutions, research shows that people with intellectual disabilities in Australia remain marginalised in the community. Developments internationally indicate that much can be learned about the links between self advocacy and accomplishing national policy priorities for social inclusion. An independent voice, developing confidence and securing rights, all features of self advocacy, have proven potential in securing policy that is 'fit-for-purpose' and building social capital, thus strengthening the social and economic fabric of our communities. Additionally, this project tests the benefit of inclusive research, placing Australia at the forefront of innovative research approaches.Read moreRead less
Building Citizenship Capacity in Young Adults With and Without Cerebral Palsy. This project will investigate practical aspects of citizenship participation within the context of a young adult population, as different from frequently reported theoretical views on citizenship. Specifically, the aim is to identify strategies necessary for building citizenship capacities for young adults with cerebral palsy (CP), as they are now living longer, but not eligible for care at the same level as during sc ....Building Citizenship Capacity in Young Adults With and Without Cerebral Palsy. This project will investigate practical aspects of citizenship participation within the context of a young adult population, as different from frequently reported theoretical views on citizenship. Specifically, the aim is to identify strategies necessary for building citizenship capacities for young adults with cerebral palsy (CP), as they are now living longer, but not eligible for care at the same level as during school years. Gaining capacities for success as a participating community member, young adults with CP need opportunities to manage not only physical and economic demands, but also develop knowledge and competencies necessary to engage in civic and social reciprocity within the community.Read moreRead less
The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the ....The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the quality of life for disabled and nondisabled family members, and ensure a more efficient use of public funding. Our findings will serve as a model for managing the life-long care of people with cerebral palsy and other severe, chronic disabilities, throughout Australia and overseas.Read moreRead less
Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sou ....Maintaining family-based placement for children and young people with disabilities. Aim: To enable families to continue caring at home for children with severe disabilities.
Significance: These families face significant challenges in juggling the demands of work, family and care to the extent that one in four decide to relinquish the care of their child. This leaves more than 37,000 children in Australia at risk of not growing up in their family home.
Expected outcomes: A psychometrically sound instrument that will identify families struggling to care for their children at home, and a family and practitioner guide of innovative solutions to maintaining family-based placements.
Read moreRead less
Determinants of successful community transition for individuals with acquired brain injury and their families. Transition home following acquired brain injury (ABI) is a critical phase in which individuals and families are vulnerable. Unsuccessful transitions are characterised by events such as financial crisis, family breakdown, loss of work, social isolation, and institutionalisation. ABI does not discriminate, but there is a higher rate in Indigenous, rural and remote communities and amongst ....Determinants of successful community transition for individuals with acquired brain injury and their families. Transition home following acquired brain injury (ABI) is a critical phase in which individuals and families are vulnerable. Unsuccessful transitions are characterised by events such as financial crisis, family breakdown, loss of work, social isolation, and institutionalisation. ABI does not discriminate, but there is a higher rate in Indigenous, rural and remote communities and amongst younger people. The societal impact of ABI includes loss of income and livelihood, health and welfare dependence, and long-term accommodation support. Research into the determinants of successful transition will alleviate the personal, social and economic burden of ABI and inform policy and program priorities for appropriate Australian Government bodies.Read moreRead less
Medical Signbank: sign language planning and development in interpreter-mediated medical and mental health care delivery for deaf Australians. This collaboration between academic linguists, interpreter service providers, health care providers, sign language interpreters, and the Deaf community will improve the recent initiatives to give deaf people equity in their access to health care services. For the first time, deaf people are able to access medical services early and effectively, improving ....Medical Signbank: sign language planning and development in interpreter-mediated medical and mental health care delivery for deaf Australians. This collaboration between academic linguists, interpreter service providers, health care providers, sign language interpreters, and the Deaf community will improve the recent initiatives to give deaf people equity in their access to health care services. For the first time, deaf people are able to access medical services early and effectively, improving treatment outcomes and, importantly, preventing conditions occurring in the first place or allowing early intervention before they become much more serious and costly to the individual and the community. This project will therefore be of national benefit, as all stakeholders from all over Australia will be able to access the Medical Signbank resource.Read moreRead less
Post retirement support solutions for people with intellectual disabilities and their parents/carers. The current generation is the first to contain a substantial number of people with intellectual disabilities who have survived to old age. Policy makers have yet to focus on their wellbeing following retirement from supported employment. Evidence cited by agencies such as Centacare, the Industry Partner, indicates that these older people and their ageing parents experience severe disadvantage an ....Post retirement support solutions for people with intellectual disabilities and their parents/carers. The current generation is the first to contain a substantial number of people with intellectual disabilities who have survived to old age. Policy makers have yet to focus on their wellbeing following retirement from supported employment. Evidence cited by agencies such as Centacare, the Industry Partner, indicates that these older people and their ageing parents experience severe disadvantage and worry about retirement. The project aims to redress this situation by investigating ways of preparing people for retirement and mechanisms for enabling supported employment agencies to provide services and supports that optimise post retirement wellbeing.Read moreRead less