Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significanc ....Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significance of this project lies in its innovative sociological approach; expected outcomes include the generation of new knowledge on needs at the end of life that move across contexts and settings. Benefits include provision of findings that will inform social and health policy and practice improvements to enable good deaths.Read moreRead less
Understanding communication about advance care planning across the lifespan. This project aims to understand how people communicate about advance care planning for children, adolescents, and adults. This project expects to generate new knowledge by using leading social scientific and linguistic methods to analyse real-world advance care planning conversations and documents. Expected outcomes include detailed knowledge about challenges people encounter in these conversations and how to manage the ....Understanding communication about advance care planning across the lifespan. This project aims to understand how people communicate about advance care planning for children, adolescents, and adults. This project expects to generate new knowledge by using leading social scientific and linguistic methods to analyse real-world advance care planning conversations and documents. Expected outcomes include detailed knowledge about challenges people encounter in these conversations and how to manage these challenges. Over 170,000 Australians die each year, most from serious illness. This project should provide significant benefits to future initiatives for enhancing communication about advance care planning, especially in relation to young Australians, older Australians, and Australians with disabilities.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE200100343
Funder
Australian Research Council
Funding Amount
$427,115.00
Summary
Dying well: Designing rural end-of-life services for chronic disease. This project aims to understand how existing rural service structures impact access to end-of-life support in chronic conditions. Chronic diseases account for 90% of deaths in Australia, yet access to end-of-life support is limited and little is known about services in rural areas. Information gathered through patient and stakeholder interviews, national survey and service mapping will be used to generate a new evidence-based ....Dying well: Designing rural end-of-life services for chronic disease. This project aims to understand how existing rural service structures impact access to end-of-life support in chronic conditions. Chronic diseases account for 90% of deaths in Australia, yet access to end-of-life support is limited and little is known about services in rural areas. Information gathered through patient and stakeholder interviews, national survey and service mapping will be used to generate a new evidence-based framework and guideline. These outputs will support early engagement with end-of-life planning, known to improve quality of life and reduce health system costs, and to inform development of equitable future end-of-life services for people and their families living with chronic conditions across rural Australia. Read moreRead less