What Do Australians Think About Privacy And Participation In Epidemiological Research?
Funder
National Health and Medical Research Council
Funding Amount
$443,015.00
Summary
There is very little research available, in Australia or internationally, about what the general public considers privacy to be; or how important privacy protection is in the context of high and low risk epidemiological studies. We also know little about what affects willingness to participate in epidemiological research. Our research will provide an evidence base, and develop resources for the legislature, the NHMRC, ethics committees and researchers.
What People With Aphasia Want: Towards Person-centred Goal-setting In Aphasia Rehabilitation
Funder
National Health and Medical Research Council
Funding Amount
$427,702.00
Summary
Consumers of health services expect their concerns and priorities to form part of their health care. People with aphasia have difficulty communicating their needs and speech pathologists are challenged to plan therapy to meet aphasic clients' needs. Family members of people with aphasia also have unrecognised concerns. The first aim of this study is to determine the goals of people with aphasia and their families and to gain their perspective of whether these goals were addressed in speech thera ....Consumers of health services expect their concerns and priorities to form part of their health care. People with aphasia have difficulty communicating their needs and speech pathologists are challenged to plan therapy to meet aphasic clients' needs. Family members of people with aphasia also have unrecognised concerns. The first aim of this study is to determine the goals of people with aphasia and their families and to gain their perspective of whether these goals were addressed in speech therapy. The study will then seek the perspective of their treating speech pathologists about the goals of therapy and the challenges that speech pathologists face in practising person-centered goal setting. This study will not only provide a framework for aphasia services in Australia but also provide data that will inform professional educational programs about person-centered practice for speech pathologists and other health professionals. It will also contribute to current theories on collaborative goal setting in a rehabilitation context.Read moreRead less
An Investigation Of The Relationship Between The Pharmaceutical Industry, Medical Profession And Medical Practitioners
Funder
National Health and Medical Research Council
Funding Amount
$186,449.00
Summary
In recent years there has been a rapid expansion in the number and range of interactions between the pharmaceutical industry and the medical profession. While this has the potential to advance research, education and health care, there are risks that such interactions may inappropriately serve commercial objectives and ultimately compromise the best interests of patients and society in general. Most major medical and pharmaceutical organisations have released guidelines of policy statements on t ....In recent years there has been a rapid expansion in the number and range of interactions between the pharmaceutical industry and the medical profession. While this has the potential to advance research, education and health care, there are risks that such interactions may inappropriately serve commercial objectives and ultimately compromise the best interests of patients and society in general. Most major medical and pharmaceutical organisations have released guidelines of policy statements on the relationship between the medical profession and the pharmaceutical industry. To date most debate has taken the form of personal observations or professional opinion , and there has been little objective research into medical industry interactions. This project aims to examine the relationship between the pharmaceutical industry, the medical profession and the medical practitioners. Specifically, the aim of this project is to establish whether this relationship as it currently exists, and as stated in guidelines from professional bodies, is appropriate in terms of justifiable ethical standards, empirical research and social perspectives. The results of this research will enable assessment of current guidelines and the development of further guidelines and regular process where appropriate.Read moreRead less