Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significanc ....Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significance of this project lies in its innovative sociological approach; expected outcomes include the generation of new knowledge on needs at the end of life that move across contexts and settings. Benefits include provision of findings that will inform social and health policy and practice improvements to enable good deaths.Read moreRead less
Staffing practices in Aboriginal primary health care services. This project aims to generate new knowledge about the impact of short-term staffing in remote Aboriginal Community Controlled Health Services on service acceptability to patients, workload and attitudes of long-term staff and the effectiveness and cost of services. The project intends to compare these results to recent findings about the impact of short-term staffing in government-run clinics, in order to quantify and describe the po ....Staffing practices in Aboriginal primary health care services. This project aims to generate new knowledge about the impact of short-term staffing in remote Aboriginal Community Controlled Health Services on service acceptability to patients, workload and attitudes of long-term staff and the effectiveness and cost of services. The project intends to compare these results to recent findings about the impact of short-term staffing in government-run clinics, in order to quantify and describe the potential positive effect of community control. Expected outcomes include rigorous evidence about the 'fly in/fly out' workforce and the impact of community control which can inform new policy that will stabilise the remote health workforce, save money and contribute to 'closing the gap' in health outcomes.Read moreRead less
Understanding communication about advance care planning across the lifespan. This project aims to understand how people communicate about advance care planning for children, adolescents, and adults. This project expects to generate new knowledge by using leading social scientific and linguistic methods to analyse real-world advance care planning conversations and documents. Expected outcomes include detailed knowledge about challenges people encounter in these conversations and how to manage the ....Understanding communication about advance care planning across the lifespan. This project aims to understand how people communicate about advance care planning for children, adolescents, and adults. This project expects to generate new knowledge by using leading social scientific and linguistic methods to analyse real-world advance care planning conversations and documents. Expected outcomes include detailed knowledge about challenges people encounter in these conversations and how to manage these challenges. Over 170,000 Australians die each year, most from serious illness. This project should provide significant benefits to future initiatives for enhancing communication about advance care planning, especially in relation to young Australians, older Australians, and Australians with disabilities.Read moreRead less
3D Printed Food for People with Swallowing Disability. This project aims to identify ways that 3D food printing (additive manufacturing using real food in a device like a ink-jet printer) could be used to improve the visual appeal of puree meals for people with swallowing difficulty, who make up ~8% of the world's population. This study will be the first to include people with swallowing disability (e.g., related to cerebral palsy, stroke, older age) and their supporters in examining the views a ....3D Printed Food for People with Swallowing Disability. This project aims to identify ways that 3D food printing (additive manufacturing using real food in a device like a ink-jet printer) could be used to improve the visual appeal of puree meals for people with swallowing difficulty, who make up ~8% of the world's population. This study will be the first to include people with swallowing disability (e.g., related to cerebral palsy, stroke, older age) and their supporters in examining the views and experiences of stakeholders on the impact of 3D food printing on quality of life, enjoyment, participation, and safety. Outcomes include new knowledge on factors affecting the implementation of 3D food printing in disability and aged care services, to inform policy, practice, and future research.Read moreRead less
Global dementias: Examining structural vulnerability and dementia outcomes. This project aims to examine the social and cultural dimensions of dementia by using a comparative ethnographic approach to examine the experiences of people living with dementia in Australia, Malaysia and India. The project expects to generate new anthropological knowledge about structural inequalities by examining how dementia is responded to in diverse geographic, cultural and social settings. Expected outcomes of thi ....Global dementias: Examining structural vulnerability and dementia outcomes. This project aims to examine the social and cultural dimensions of dementia by using a comparative ethnographic approach to examine the experiences of people living with dementia in Australia, Malaysia and India. The project expects to generate new anthropological knowledge about structural inequalities by examining how dementia is responded to in diverse geographic, cultural and social settings. Expected outcomes of this project include the creation of a new evidence-base on dementia and the production of briefing documents to guide global health frameworks. The project should provide significant benefits for people living with dementia by providing locally-relevant strategies to respond to dementia and resultant disability.Read moreRead less
Engaging residents and families in aged care facilities. This project aims to investigate resident and family engagement in communicating about medicines that affect the mind, emotions and behaviour, by developing and testing creative strategies in aged care facilities. This project expects to generate new knowledge about resident and family communication within a dynamic context of sociocultural, environmental and interpersonal challenges and opportunities. Expected outcomes of this project inc ....Engaging residents and families in aged care facilities. This project aims to investigate resident and family engagement in communicating about medicines that affect the mind, emotions and behaviour, by developing and testing creative strategies in aged care facilities. This project expects to generate new knowledge about resident and family communication within a dynamic context of sociocultural, environmental and interpersonal challenges and opportunities. Expected outcomes of this project include enhanced capacity to enable resident and family participation in bridging communication gaps. This should provide significant benefits, in terms of increased understandings about how and under what circumstances, medicines decision making can occur with residents and families in diverse situations.Read moreRead less
Sex-specific epigenetic atlas across lifespan . This project aims to uncover sex-specific molecular marks that either predict or mediate healthy ageing across multiple tissues in humans. This project expects to generate new knowledge of cellular heterogeneity and epigenetic control of phenotype and healthy ageing. Further, we anticipate to uncover age-associated changes that differ between males and females, an area of chronic research under representation. These outcomes will lead to a comprehe ....Sex-specific epigenetic atlas across lifespan . This project aims to uncover sex-specific molecular marks that either predict or mediate healthy ageing across multiple tissues in humans. This project expects to generate new knowledge of cellular heterogeneity and epigenetic control of phenotype and healthy ageing. Further, we anticipate to uncover age-associated changes that differ between males and females, an area of chronic research under representation. These outcomes will lead to a comprehensive understanding of fundamental biological processes across lifespan, and our development of an open access atlas will underpin evidence-based personalised health strategies to keep Australians healthier for longer. Read moreRead less
Mapping climate change vulnerability of older Australians to extreme heat. Exposure to extreme heat is associated with negative health outcomes and has been recognized as a global health challenge in the context of climate change, especially among older people. While the direct heat-related mortality for older people reached a record high of 345,000 deaths worldwide in 2019, which was 80.6% higher than the 2000–05 average, there has been no detailed study in Australia. This project is to have a ....Mapping climate change vulnerability of older Australians to extreme heat. Exposure to extreme heat is associated with negative health outcomes and has been recognized as a global health challenge in the context of climate change, especially among older people. While the direct heat-related mortality for older people reached a record high of 345,000 deaths worldwide in 2019, which was 80.6% higher than the 2000–05 average, there has been no detailed study in Australia. This project is to have a national picture of the impact of extreme heat on the health outcomes of older people and associated healthcare costs at Statistical Area level 3 (SA3), to inform the design and implementation of tailored interventions to minimize the health risk and costs from extreme heat to protect the health of this vulnerable group. Read moreRead less
Increasing advance personal planning by older adults. This project aims to increase the uptake of advance personal planning among people aged 65 years or over in the community by developing, implementing and evaluating a community action model. People have a legal right to engage in advance personal planning, a process that helps them discuss and document their financial, personal and health preferences, in case they later lose the ability to make or communicate decisions. Few people plan ahead, ....Increasing advance personal planning by older adults. This project aims to increase the uptake of advance personal planning among people aged 65 years or over in the community by developing, implementing and evaluating a community action model. People have a legal right to engage in advance personal planning, a process that helps them discuss and document their financial, personal and health preferences, in case they later lose the ability to make or communicate decisions. Few people plan ahead, even though it can reduce the likelihood of financial exploitation, family conflict and unwanted medical care. This project aims to provide a model of community action to build capacity and collaboration across social services and improve the wellbeing of older people.Read moreRead less
Co-designing and co-evaluating technology experiences in residential care . This project aims for meaningful experiences and skill development by older adults living in residential care using technologies. Based on the interests, abilities and everyday context it is important to introduce technologies in a way that supports agency and confidence. Through co-design and co-evaluation we develop a process to explore technology choices and learning. We will (i) generate guidelines for introducing te ....Co-designing and co-evaluating technology experiences in residential care . This project aims for meaningful experiences and skill development by older adults living in residential care using technologies. Based on the interests, abilities and everyday context it is important to introduce technologies in a way that supports agency and confidence. Through co-design and co-evaluation we develop a process to explore technology choices and learning. We will (i) generate guidelines for introducing technology, (ii) develop methods and success criteria for the co-evaluation of the process, and (iii) gain in-depth understandings of how facilitation and technology uptake are enacted in a range of residential settings. Older adults in residential care will benefit through increased digital equity and technology adoption. Read moreRead less