RCT Of An Intervention To Improve The Health Of Adolescents With Intellectual Disability.
Funder
National Health and Medical Research Council
Funding Amount
$803,146.00
Summary
A high number of people with intellectual disability die at a younger age than the general population - 5 to 20 years younger. The standard of their health is low compared with others. They experience high levels of unrecognised disease and do not receive health promotion or health screening. As they comprise 2.7% of our population (502,000 Australians) - this situation is unjust and should be rectified. The barriers to good health for them include communication difficulties, impaired recall of ....A high number of people with intellectual disability die at a younger age than the general population - 5 to 20 years younger. The standard of their health is low compared with others. They experience high levels of unrecognised disease and do not receive health promotion or health screening. As they comprise 2.7% of our population (502,000 Australians) - this situation is unjust and should be rectified. The barriers to good health for them include communication difficulties, impaired recall of significant health information, negative social attitudes and inadequate training about disability for health service providers. This project is an attempt to minimise some of these barriers by examining the use of a Health Intervention Package. We want to give young people with intellectual disabilty the chance of similar health standards to the rest of the population. This package includes a comprehensive health review, a diary for collecting and storing health information, and advocacy training. We specifically want to examine if adolescents with intellectual disabilty using this package will receive better healthcare and improved health outcomes. We envisage that if successful, the intervention will establish good health practices for the rest of the young person's life. This group of young people is particularly at risk as they move from care provided by specialist paediatricians to accessing General Practitioners' services. To achieve this, the study will seek to recruit 1000 young people (and their parents and teachers) in Special Schools in Queensland. We have already shown that the comprehensive health review does improve health outcomes adults with intellectual disabilty, and the health information and advocacy training has received very positive evaluation. We now need to investigate the effect of both these processes in adolscence and establish if evidence exists to support wider implementation throughout the sector.Read moreRead less
Quality and outcomes of individual supported living arrangements for adults with intellectual and developmental disabilities. This project identifies service quality aspects contributing to positive outcomes in individual supported living arrangements that enable adults with developmental disabilities to live in their own homes. 150 arrangements will be evaluated across Western Australia, New South Wales and Victoria, providing evidence of service quality in support of people with disability hav ....Quality and outcomes of individual supported living arrangements for adults with intellectual and developmental disabilities. This project identifies service quality aspects contributing to positive outcomes in individual supported living arrangements that enable adults with developmental disabilities to live in their own homes. 150 arrangements will be evaluated across Western Australia, New South Wales and Victoria, providing evidence of service quality in support of people with disability having choice and control in their living arrangements.Read moreRead less
Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration ....Disaster risk reduction practices that leave nobody behind. This project aims to answer critical questions about how to assist people with disabilities (PWD) in disasters, what their support needs are and how they might help themselves to better prepare for disasters. Significance includes coupling a person-centred emergency preparedness tool with cross-sectoral processes to collect and use data about the support needs of PWD in emergencies, increase cross-sector communication and collaboration between emergency managers and community services, and improve equitable access for PWD to community-level disaster risk reduction (DRR). The expected outcome will be the co-design of effective mechanisms that state & federal decision makers can use to scale-up disability-inclusive DRR across Australia.Read moreRead less
Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting ....Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs. This research will inform the development of policy and programs in the disability, aged care, and health sectors. The research aims to improve the capacity of disability group homes to respond to the health and ageing issues of older people with ID,to improve their quality of life.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE190101512
Funder
Australian Research Council
Funding Amount
$383,960.00
Summary
Inclusive community planning for people with disabilities in regional areas. This project aims to produce new knowledge to foster inclusion of people with disabilities in local community planning practice in regional areas. Exclusion of people with disabilities in local communities persists despite the national disability reform agenda. This project will place spatial justice thinking and critical disability theory within a community planning and development context to examine the concept as a s ....Inclusive community planning for people with disabilities in regional areas. This project aims to produce new knowledge to foster inclusion of people with disabilities in local community planning practice in regional areas. Exclusion of people with disabilities in local communities persists despite the national disability reform agenda. This project will place spatial justice thinking and critical disability theory within a community planning and development context to examine the concept as a scaled phenomenon. Using participatory research methods, the project will directly engage persons with disabilities and community planners in co-producing an adaptive model of practice. The project outcomes will help to create more inclusive, healthy, and resilient communities that enable people with disabilities to lead ordinary and fulfilling lives.Read moreRead less
The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal ....The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal daily with the lived experiences of disadvantage and poor mental health in people with disabilities, do not have evidence to support policy and service sector reform. This project will provide this critical evidence as well as build research capacity in disability-related research and lead to better monitoring of disability-related health inequities.Read moreRead less
The effect of acquiring a disability in adulthood. This project aims to analyse the effect the acquisition of a disability in adulthood has on subsequent socio-economic circumstances (employment, housing, education, income, social capital, wealth) and wellbeing. Researchers from epidemiology, econometrics and statistics will use longitudinal data to model the patterns of disability and subsequent socio-economic and health circumstances over time. The methods aim to make causal statements and pro ....The effect of acquiring a disability in adulthood. This project aims to analyse the effect the acquisition of a disability in adulthood has on subsequent socio-economic circumstances (employment, housing, education, income, social capital, wealth) and wellbeing. Researchers from epidemiology, econometrics and statistics will use longitudinal data to model the patterns of disability and subsequent socio-economic and health circumstances over time. The methods aim to make causal statements and provide a template for research and evaluation in this field. Outcomes are expected to set priorities for action to improve socio-economic conditions, productivity and health for people with disabilities.Read moreRead less
Developing and testing a decision system for identifying housing options, mapping preferences and evaluating priorities in the disability market. Disability housing is problematic, largely because stakeholders find it difficult to agree on priorities whilst incorporating consumer needs and wants for housing. This project seeks to develop a systematic approach to improve multi-stakeholder decision making that can increase the reliability of decisions and improve consumer outcomes. Innovation lies ....Developing and testing a decision system for identifying housing options, mapping preferences and evaluating priorities in the disability market. Disability housing is problematic, largely because stakeholders find it difficult to agree on priorities whilst incorporating consumer needs and wants for housing. This project seeks to develop a systematic approach to improve multi-stakeholder decision making that can increase the reliability of decisions and improve consumer outcomes. Innovation lies in its customer oriented design and application of business models in the disability sector as well as its integrated disciplinary approach. The research design has not been applied in the Australian research context and aims to provide a much needed blueprint for market investment to develop viable, consumer directed, disability housing options.Read moreRead less
Keeping my place in the community: achieving successful ageing-in-place for people with intellectual and developmental disabilities. This project, in partnership with aged care and disability agencies across two states, aims to examine ways the aged care, social and health needs of people with intellectual and developmental disabilities may be met in rural and urban settings. It will explore mechanisms that will lead to a better integration of the aged care and disability sectors.
Retention of the Aboriginal health and disability workforce. This project aims to develop evidence-based retention strategies for the Indigenous frontline health and disability workforces. Indigenous people in these roles are critical to improving access to culturally safe and effective services and support for Indigenous Australians. The availability of culturally safe services, interventions and support will assist in closing the gap in health, education and socio-economic outcomes between Ind ....Retention of the Aboriginal health and disability workforce. This project aims to develop evidence-based retention strategies for the Indigenous frontline health and disability workforces. Indigenous people in these roles are critical to improving access to culturally safe and effective services and support for Indigenous Australians. The availability of culturally safe services, interventions and support will assist in closing the gap in health, education and socio-economic outcomes between Indigenous and non-Indigenous Australians. This project aims to uncover the factors that influence Indigenous front line workers to stay in their crucial roles. The findings will be translated into culturally-appropriate workforce retention strategies.Read moreRead less