The Economic And Social Impacts Of Genetic Sequencing For Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$1,263,576.00
Summary
In this project we will quantify the social and financial costs to families of severe intellectual disability that is genetic in origin. We will assess these impacts in terms of poorer carer health, relationship breakdown, lost income and risk of poverty, as well as increased dependence on government, particularly on welfare payments, and reduced personal income tax paid. We will then determine the extent to which modern clinical genomics can contribute to ameliorating these impacts.
Do Additional Allied Health Services For Rehabilitation Reduce Length Of Stay Without Compromising Patient Outcomes?
Funder
National Health and Medical Research Council
Funding Amount
$238,424.00
Summary
This project will examine whether the provision of additional therapy services on a Saturday reduces health care costs, and improves the health of hospital inpatients receiving rehabilitation when compared to the usual Monday to Friday service. Preliminary information suggests additional Saturday rehabilitation services could reduce the time a patient stays in hospital by 3 days. This large clinical trial will investigate the cost effectiveness and patients outcomes of such a service.
Preconception Carrier Screening: Providing Genetically At Risk Families With A Chance To Have Healthy Children
Funder
National Health and Medical Research Council
Funding Amount
$857,443.00
Summary
Current preconception carrier screening is not widely accessible and has no public funding. We will develop a model of the social and economic impacts of genetic disorders on families and government and the cost of a range of genomic technologies to determine the social and economic benefits that could be realised by the introduction of accessible and affordable preconception carrier screening using existing technologies: gene panels and advances in whole genome sequencing (WGS).
Evidence Innovation: Transforming The Efficiency Of Systematic Review
Funder
National Health and Medical Research Council
Funding Amount
$928,417.00
Summary
Australia invests considerable resources developing reliable summaries of research evidence to understand the benefits and risks of drugs and health programs. We will use information technologies and ‘crowdsourcing’ to improve the production of evidence summaries, evaluate this approach in a randomised study, and facilitate implementation throughout Australia. This will improve the translation of research into health practice and policy, reducing research waste and improving health outcomes.
Giving An Adult Life After Fontan Surgery To Those With The Most Severe Congenital Heart Conditions
Funder
National Health and Medical Research Council
Funding Amount
$1,295,355.00
Summary
The Fontan operation is the last of a series of operations performed for babies born with a single pumping heart chamber (ventricle). In the largest research of its kind, the Australia and New Zealand Fontan Registry partners with Heartkids, the parents’ association and the National Heart Foundation are intending to improve their life as they step into adulthood. We believe that our new standardised model of care will decrease their risk of experiencing adverse events such as stroke and reoperat ....The Fontan operation is the last of a series of operations performed for babies born with a single pumping heart chamber (ventricle). In the largest research of its kind, the Australia and New Zealand Fontan Registry partners with Heartkids, the parents’ association and the National Heart Foundation are intending to improve their life as they step into adulthood. We believe that our new standardised model of care will decrease their risk of experiencing adverse events such as stroke and reoperation.Read moreRead less
Improving Decision Making On Health Interventions: Factoring In The Long Term Economic Impacts Of Informal (unpaid) Care
Funder
National Health and Medical Research Council
Funding Amount
$628,963.00
Summary
This project looks at the future health of the Australian population that will keep more informal carers out of employment and diminish their own livings standards, thereby reducing funds available to government and the impact of interventions that could improve the health of the population and increase employment of carers.
Pathways To Better Health And Education Outcomes For Tasmania’s Children
Funder
National Health and Medical Research Council
Funding Amount
$593,173.00
Summary
For far too many of these children, a poor start predicts a poor future. This is especially true for Tasmanian children who live in amongst the most disadvantaged circumstances in Australia. This project will follow 12,000 Tasmanian children through early childhood services from birth to age five to find out if services are meeting their needs. The information will be used to improve services and improve the health and education of all Tasmanian children.
A Health And Wellbeing Model Of Care For Disability Service Providers
Funder
National Health and Medical Research Council
Funding Amount
$599,428.00
Summary
This project aims to develop a model of care that improves the health and wellbeing of children with a disability, and their parents, implementing it within a major disability service and providing evidence of its impact on outcomes. The research involves partners from service planning, health economics, child health and development working together to ensure that the model of care for services is strongly aligned to the vision for improved outcomes through the National Disability Insurance Sche ....This project aims to develop a model of care that improves the health and wellbeing of children with a disability, and their parents, implementing it within a major disability service and providing evidence of its impact on outcomes. The research involves partners from service planning, health economics, child health and development working together to ensure that the model of care for services is strongly aligned to the vision for improved outcomes through the National Disability Insurance Scheme.Read moreRead less
Guidance Of Heart Failure Management Programs By Risk Assessment
Funder
National Health and Medical Research Council
Funding Amount
$991,654.00
Summary
After admission with acute heart failure (HF), readmissions to hospital are frequent. This Partnership project aims to reduce HF readmissions by using data linkage to target community services, developing a HF readmission prediction score, and applying this to a novel, variable intensity HF management program, so resources are directed towards the highest risk patients. The study will evaluate the cost-effectiveness of this approach and provide educate community-based providers on the process.
A Large-scale Randomised Trial To Define The Optimal Front-of-pack Labelling System For Australian Foods
Funder
National Health and Medical Research Council
Funding Amount
$304,298.00
Summary
The Federal Government is currently working to design a new system for the labelling of Australian foods. The system is intended to help consumers make healthier food choices that will reduce the risks of obesity, diabetes, high blood pressure and other serious health problems. This project will test the effectiveness of the proposed system at helping people make better food purchases. The information obtained will be used to directly inform government policy making