NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It wi ....NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It will specifically examine the relationship between self-directed individualised funding and its effect on personal well-being, self-esteem and voice, choice and control. People with intellectual disability will act as co-researchers within the study.Read moreRead less
Post-parental care planning for rural people with intellectual disabilities. This project addresses the urgent issue of post-parental care plans for people with an intellectual disability and their older parental carers in rural areas. The project aims to co-design a post-parental care planning approach and resources in collaboration with people with an intellectual disability, older parental carers and disability services. The results will be used by the researchers to generate new knowledge on ....Post-parental care planning for rural people with intellectual disabilities. This project addresses the urgent issue of post-parental care plans for people with an intellectual disability and their older parental carers in rural areas. The project aims to co-design a post-parental care planning approach and resources in collaboration with people with an intellectual disability, older parental carers and disability services. The results will be used by the researchers to generate new knowledge on post-parental care transitions and how to construct post-parental care plans within the context of the National Disability Insurance Scheme. The planning approach and resources will assist families and services to avert crisis transitions through improved coordination, preparation and support for post-parental care. Read moreRead less
Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliance ....Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliances with the government, industry and community partners will develop a practice framework to prevent everyday harms and the escalation to abuse, and to promote safety and wellbeing. The research has policy benefits for capacity-building in the sector to act on the rights and voices of people with disability. Read moreRead less
Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national p ....Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national policy aspirations for people with disability of rights, choice, inclusion and independence. Using social geography and recognition theory, the project expects to deliver new understanding and improved practice around how paid support relationships can foster mutual care, respect and value at a critically important time in young people’s lives.Read moreRead less
Investigating the impacts and future of land rights and land restitution. This project aims to develop new understandings of the effects of land rights on Aboriginal communities and the nation. The era of gaining rights has, for many, transitioned into a time of restitution and seeking economic and cultural futures for younger generations. It remains to be seen what these futures will be, how they will align with or challenge national interests, and what hopes younger Aboriginal people have for ....Investigating the impacts and future of land rights and land restitution. This project aims to develop new understandings of the effects of land rights on Aboriginal communities and the nation. The era of gaining rights has, for many, transitioned into a time of restitution and seeking economic and cultural futures for younger generations. It remains to be seen what these futures will be, how they will align with or challenge national interests, and what hopes younger Aboriginal people have for country. This project aims to uncover future aspirations, engaging with Yanyuwa claimants, the first group to lodge a land claim under the Aboriginal Land Rights (NT) Act 1976, and land rights professionals. The project aims to reveal intercultural understandings of land rights and the future for Australian lands and waters.Read moreRead less
Critical conversations: An ethnographic study of Australian organ donation. There is an urgent need for new culturally sensitive ways of improving organ donation rates in Australia, which are lower in culturally and linguistically diverse groups. The project aims to reorient the research focus from decisions made prior to death to the actual times and clinical spaces in which these decisions occur. Through a comparative cross-cultural analysis this research will provide essential knowledge that ....Critical conversations: An ethnographic study of Australian organ donation. There is an urgent need for new culturally sensitive ways of improving organ donation rates in Australia, which are lower in culturally and linguistically diverse groups. The project aims to reorient the research focus from decisions made prior to death to the actual times and clinical spaces in which these decisions occur. Through a comparative cross-cultural analysis this research will provide essential knowledge that will inform innovative approaches to understanding organ donation. The outcomes will have a strong bearing on how organ donation communication, professional protocols, and ultimately, organ donation practice evolve in Australia. Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150101506
Funder
Australian Research Council
Funding Amount
$327,612.00
Summary
Supporting end-of-life care in a culturally diverse society. Given Australia's diverse ageing population, there is increasingly urgent need for culturally sensitive end-of-life care. Currently, end-of-life planning is promoted and standardised in the form of advance care directives, which have a lower uptake in culturally and linguistically diverse groups. The project aims to identify and theorise points of uptake and resistance to advance care planning in Australia's largest Asian populations. ....Supporting end-of-life care in a culturally diverse society. Given Australia's diverse ageing population, there is increasingly urgent need for culturally sensitive end-of-life care. Currently, end-of-life planning is promoted and standardised in the form of advance care directives, which have a lower uptake in culturally and linguistically diverse groups. The project aims to identify and theorise points of uptake and resistance to advance care planning in Australia's largest Asian populations. This new knowledge will be used to develop strategies for cross-cultural understanding in relation to end-of-life care preferences. The outcomes will have a strong bearing on how community attitudes, the experience of individuals, professional protocols, and ultimately, legislation evolve in Australia.Read moreRead less
The Social Production of Science in Antarctica: A Study of Davis Station. Antarctica is a unique scientific laboratory. It is the only continent historically uninhabited by humans; access to its vast land and ice-scapes, and its surrounding oceans, is today almost exclusively reserved for scientists. Although these 'Antarcticans' represent multiple disciplines, and pursue a wide variety of research agendas, their shared experiences of working on the continent, and their shared professional netwo ....The Social Production of Science in Antarctica: A Study of Davis Station. Antarctica is a unique scientific laboratory. It is the only continent historically uninhabited by humans; access to its vast land and ice-scapes, and its surrounding oceans, is today almost exclusively reserved for scientists. Although these 'Antarcticans' represent multiple disciplines, and pursue a wide variety of research agendas, their shared experiences of working on the continent, and their shared professional networks, mean that they constitute a distinct community of practice. However, this community has yet to be subjected to detailed ethnographic enquiry. This project aims to examine Antarctic scientists' research practices, and their cultures of knowledge production, through an ethnographic study of Australia's Davis Station.Read moreRead less
Reuniting cargoes: Underwater Cultural Heritage of the Maritime Silk Route. Beginning in the mid 1400s the Maritime Silk Route witnessed the largest known expansion of global trade. But the legacy of artefacts retrieved from this time has not been appropriately understood because the objects were mostly salvaged and dispersed without recording the archaeological details of their find-spots. Our multilateral consortium aims to discover the cultural value of the largest Southeast Asian ceramic col ....Reuniting cargoes: Underwater Cultural Heritage of the Maritime Silk Route. Beginning in the mid 1400s the Maritime Silk Route witnessed the largest known expansion of global trade. But the legacy of artefacts retrieved from this time has not been appropriately understood because the objects were mostly salvaged and dispersed without recording the archaeological details of their find-spots. Our multilateral consortium aims to discover the cultural value of the largest Southeast Asian ceramic collections in Indonesia and Australia with archaeological science. By employing and enhancing international conventions, the project will generate new knowledge about this decisive epoch in world history and build capacity to preserve the underwater cultural heritage of our region for future generations.Read moreRead less
Museum of New and Old Art (MONA) and the social and cultural coordinates of urban regeneration through arts tourism. This project will analyse the extraordinary success of MONA (Museum of New and Old Art) as an art gallery and use this information to identify, stimulate and sustain innovative collaborations between MONA, the cities of Hobart and Glenorchy, and the state of Tasmania, aimed at maximising visitor numbers to the state from art related tourism.