Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting ....Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs. This research will inform the development of policy and programs in the disability, aged care, and health sectors. The research aims to improve the capacity of disability group homes to respond to the health and ageing issues of older people with ID,to improve their quality of life.Read moreRead less
Enabling engagement and inclusion: organisational factors that embed active support in accommodation services for people with intellectual disability. The study will investigate the processes and structures necessary to ensure frontline staff deliver high quality support to people with intellectual disability, which enables them to engage in meaningful activity. This knowledge will inform disability service organisation processes and provide indicators of structures necessary for effective servi ....Enabling engagement and inclusion: organisational factors that embed active support in accommodation services for people with intellectual disability. The study will investigate the processes and structures necessary to ensure frontline staff deliver high quality support to people with intellectual disability, which enables them to engage in meaningful activity. This knowledge will inform disability service organisation processes and provide indicators of structures necessary for effective services.Read moreRead less
Effective Decision Making Support for People with Cognitive Disability. This project aims to produce and test evidence-based education resources that boost the ability of supporters of people with cognitive disability to put the supported person’s own desires and values at the centre of decisions, as required by treaty obligations and best practice. The project aims to develop innovative education resources, and to then investigate the impact of the resources on the practices of decision-making ....Effective Decision Making Support for People with Cognitive Disability. This project aims to produce and test evidence-based education resources that boost the ability of supporters of people with cognitive disability to put the supported person’s own desires and values at the centre of decisions, as required by treaty obligations and best practice. The project aims to develop innovative education resources, and to then investigate the impact of the resources on the practices of decision-making supporters and the person being supported in a randomised control trial in three jurisdictions. The anticipated outcome is a demonstrably effective capacity-building tool, able to cater for all types of cognitive disabilities and the full spectrum of support contexts from guardianship to informal support.Read moreRead less
Improving academic outcomes by moderating anxiety in children with autism. The project aims to investigate links between anxiety and academic enablers for children with autism. As a group, these children are currently achieving at lower rates than their peers, with implications for their future social and economic wellbeing. Effective interventions to improve educational outcomes are lacking. This project will investigate how anxiety, a commonly occurring condition in autism, impacts attitudes a ....Improving academic outcomes by moderating anxiety in children with autism. The project aims to investigate links between anxiety and academic enablers for children with autism. As a group, these children are currently achieving at lower rates than their peers, with implications for their future social and economic wellbeing. Effective interventions to improve educational outcomes are lacking. This project will investigate how anxiety, a commonly occurring condition in autism, impacts attitudes and behaviours that facilitate students’ participation in and ability to benefit from academic instruction in the classroom. Findings are intended to provide an evidence base for the development of an intervention suitable for use by service providers to increase academic achievement in children with autism.Read moreRead less
Fostering lifelong connections for children in permanent care. The out-of-home care sector in Australia is undergoing transformation to ensure children who cannot be restored to birth families exit care to permanent families. New South Wales is leading the way on these reforms. The emerging Australian policy model, permanency with lifelong connection to birth families, is distinctly different from the policy models in similar Western nations. While the Australian policy goal is clear, practices ....Fostering lifelong connections for children in permanent care. The out-of-home care sector in Australia is undergoing transformation to ensure children who cannot be restored to birth families exit care to permanent families. New South Wales is leading the way on these reforms. The emerging Australian policy model, permanency with lifelong connection to birth families, is distinctly different from the policy models in similar Western nations. While the Australian policy goal is clear, practices for achieving this goal are under-developed. This action research project will engage the New South Wales out-of-home care sector to design and trial relationship-building practices that promote positive relationships between children and their birth families.Read moreRead less
The production, use and effect of social work research. This project aims to reform social work research to improve the quality and effectiveness of human services. The human services industry is vital to many people’s quality of life, but lacks innovation and struggles to demonstrate its effectiveness. Crucially for social work, research expands thinking about how to respond to social disadvantage. This project intends to examine the scope and quality of Australian social work research in child ....The production, use and effect of social work research. This project aims to reform social work research to improve the quality and effectiveness of human services. The human services industry is vital to many people’s quality of life, but lacks innovation and struggles to demonstrate its effectiveness. Crucially for social work, research expands thinking about how to respond to social disadvantage. This project intends to examine the scope and quality of Australian social work research in child protection, disability services, and aged care; assess the use of this research to the human services sector and its effect on generating innovation; and develop strategies to advance the production, uptake, and effect of social work research.Read moreRead less
Transforming The Diagnosis And Management Of Severe Neurocognitive Disorders Through Genomics
Funder
National Health and Medical Research Council
Funding Amount
$2,499,330.00
Summary
Neurocognitive disorders (NCD) are one of the most common genetic conditions in our society and it results with a need for ongoing permanent care for many affected people. Until recently, only 30% of people with NCD could be diagnosed but this has changed with the availability of genomic testing where all genes can be tested at once. The use of genomics in the CRE will lead to new NCD genes being identified and this information being translated into a clinical setting.
Forgotten Australians: identifying long term outcomes for people who lived in institutional and other forms of out-of-home care. In line with international recognition that children who lived in orphanages have suffered disenfranchisement and disadvantage in adulthood, this project will add to empirical knowledge of this population, track experiences associated with adverse and the more optimal life outcomes, and identify areas for intervention to promote their wellness.
Enhancing services to Australian children and families: linking workforce characteristics, job quality, and quality and outcomes in social services. This project aims to promote best practice in child and family welfare services, and to improve the industrial and social recognition of child and family welfare work in Australia. The CIs will construct an analytical framework for explaining the links between the nature and deployment of the child and family services workforce, service delivery sys ....Enhancing services to Australian children and families: linking workforce characteristics, job quality, and quality and outcomes in social services. This project aims to promote best practice in child and family welfare services, and to improve the industrial and social recognition of child and family welfare work in Australia. The CIs will construct an analytical framework for explaining the links between the nature and deployment of the child and family services workforce, service delivery systems and outcomes, and social policy regimes, with wider application to other personal social services. Judicious use of international comparison will assist identification of best practice. The project will inform policy and research in social service provision to vulnerable families, and the aged and disabled.Read moreRead less
Families on the Fringe: Promoting the Social Inclusion of Young Families who have Relocated to Non-Metropolitan Areas. We aim to promote the social inclusion of young families who relocate to non-metropolitan communities by developing policy and infrastructure options based on an understanding of their characteristics and needs. The project's significance lies in capturing these characteristics to provide models upon which policy initiatives can be developed and policy outcomes monitored. Th ....Families on the Fringe: Promoting the Social Inclusion of Young Families who have Relocated to Non-Metropolitan Areas. We aim to promote the social inclusion of young families who relocate to non-metropolitan communities by developing policy and infrastructure options based on an understanding of their characteristics and needs. The project's significance lies in capturing these characteristics to provide models upon which policy initiatives can be developed and policy outcomes monitored. The project combines the Office of Economic and Statistic Research's expertise in socio-demographic research and policy development, The Benevolent Society and Mission Australia's experience in community service delivery in geographically diverse communities, with the CI's research skills, towards strengthening the social and economic fabric of Australian communities Read moreRead less