Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting ....Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs. This research will inform the development of policy and programs in the disability, aged care, and health sectors. The research aims to improve the capacity of disability group homes to respond to the health and ageing issues of older people with ID,to improve their quality of life.Read moreRead less
Enabling engagement and inclusion: organisational factors that embed active support in accommodation services for people with intellectual disability. The study will investigate the processes and structures necessary to ensure frontline staff deliver high quality support to people with intellectual disability, which enables them to engage in meaningful activity. This knowledge will inform disability service organisation processes and provide indicators of structures necessary for effective servi ....Enabling engagement and inclusion: organisational factors that embed active support in accommodation services for people with intellectual disability. The study will investigate the processes and structures necessary to ensure frontline staff deliver high quality support to people with intellectual disability, which enables them to engage in meaningful activity. This knowledge will inform disability service organisation processes and provide indicators of structures necessary for effective services.Read moreRead less
Effective Decision Making Support for People with Cognitive Disability. This project aims to produce and test evidence-based education resources that boost the ability of supporters of people with cognitive disability to put the supported person’s own desires and values at the centre of decisions, as required by treaty obligations and best practice. The project aims to develop innovative education resources, and to then investigate the impact of the resources on the practices of decision-making ....Effective Decision Making Support for People with Cognitive Disability. This project aims to produce and test evidence-based education resources that boost the ability of supporters of people with cognitive disability to put the supported person’s own desires and values at the centre of decisions, as required by treaty obligations and best practice. The project aims to develop innovative education resources, and to then investigate the impact of the resources on the practices of decision-making supporters and the person being supported in a randomised control trial in three jurisdictions. The anticipated outcome is a demonstrably effective capacity-building tool, able to cater for all types of cognitive disabilities and the full spectrum of support contexts from guardianship to informal support.Read moreRead less
Transforming The Diagnosis And Management Of Severe Neurocognitive Disorders Through Genomics
Funder
National Health and Medical Research Council
Funding Amount
$2,499,330.00
Summary
Neurocognitive disorders (NCD) are one of the most common genetic conditions in our society and it results with a need for ongoing permanent care for many affected people. Until recently, only 30% of people with NCD could be diagnosed but this has changed with the availability of genomic testing where all genes can be tested at once. The use of genomics in the CRE will lead to new NCD genes being identified and this information being translated into a clinical setting.
Forgotten Australians: identifying long term outcomes for people who lived in institutional and other forms of out-of-home care. In line with international recognition that children who lived in orphanages have suffered disenfranchisement and disadvantage in adulthood, this project will add to empirical knowledge of this population, track experiences associated with adverse and the more optimal life outcomes, and identify areas for intervention to promote their wellness.
Enhancing services to Australian children and families: linking workforce characteristics, job quality, and quality and outcomes in social services. This project aims to promote best practice in child and family welfare services, and to improve the industrial and social recognition of child and family welfare work in Australia. The CIs will construct an analytical framework for explaining the links between the nature and deployment of the child and family services workforce, service delivery sys ....Enhancing services to Australian children and families: linking workforce characteristics, job quality, and quality and outcomes in social services. This project aims to promote best practice in child and family welfare services, and to improve the industrial and social recognition of child and family welfare work in Australia. The CIs will construct an analytical framework for explaining the links between the nature and deployment of the child and family services workforce, service delivery systems and outcomes, and social policy regimes, with wider application to other personal social services. Judicious use of international comparison will assist identification of best practice. The project will inform policy and research in social service provision to vulnerable families, and the aged and disabled.Read moreRead less
Families on the Fringe: Promoting the Social Inclusion of Young Families who have Relocated to Non-Metropolitan Areas. We aim to promote the social inclusion of young families who relocate to non-metropolitan communities by developing policy and infrastructure options based on an understanding of their characteristics and needs. The project's significance lies in capturing these characteristics to provide models upon which policy initiatives can be developed and policy outcomes monitored. Th ....Families on the Fringe: Promoting the Social Inclusion of Young Families who have Relocated to Non-Metropolitan Areas. We aim to promote the social inclusion of young families who relocate to non-metropolitan communities by developing policy and infrastructure options based on an understanding of their characteristics and needs. The project's significance lies in capturing these characteristics to provide models upon which policy initiatives can be developed and policy outcomes monitored. The project combines the Office of Economic and Statistic Research's expertise in socio-demographic research and policy development, The Benevolent Society and Mission Australia's experience in community service delivery in geographically diverse communities, with the CI's research skills, towards strengthening the social and economic fabric of Australian communities Read moreRead less
Working from home: New media technology, workplace culture and the changing nature of domesticity. New media technologies are often marketed as liberating people from the workplace, providing flexibility in meeting work obligations. Communication technologies in particular make working from home increasingly possible: laptops, mobile phones and PDAs make any space a potential site for paid labour. This research studies the effect of new media technologies on how work is performed, where and by w ....Working from home: New media technology, workplace culture and the changing nature of domesticity. New media technologies are often marketed as liberating people from the workplace, providing flexibility in meeting work obligations. Communication technologies in particular make working from home increasingly possible: laptops, mobile phones and PDAs make any space a potential site for paid labour. This research studies the effect of new media technologies on how work is performed, where and by whom, to gauge their impact on the community more broadly. It also asks whether these new relationships to work raise the prospect of changing traditional attitudes to the work performed in and outside the home by men and women.Read moreRead less
Consumer value and disability services: The impact of increased autonomy. This project seeks to explore a key question of the National Disability Insurance Scheme (NDIS): will service provision improve when service users have the ability to choose? In 2016, the NDIS will start rolling out and nearly half a million people with a disability will be able to choose disability services. The project aims to identify changes in objective and perceived consumer value pre-NDIS and post-NDIS, and differen ....Consumer value and disability services: The impact of increased autonomy. This project seeks to explore a key question of the National Disability Insurance Scheme (NDIS): will service provision improve when service users have the ability to choose? In 2016, the NDIS will start rolling out and nearly half a million people with a disability will be able to choose disability services. The project aims to identify changes in objective and perceived consumer value pre-NDIS and post-NDIS, and differences in how market segments use their autonomy and whether this leads to differences in benefits gained from the NDIS. Findings are intended to contribute to a better understanding of when free market mechanisms serve the needs of their citizens better than traditional means of government support.Read moreRead less
Investigating the Impact of Work Design on Productive Wellbeing in Mercy Health: The Modernising Third Sector. Around the world the Third Sector (TS) of the economy is coming under pressure to modernise their management. The typical approaches to modern management being imposed overseas may not be appropriate for TS organisations and therefore they need to be critically examined, especially for their impact on employees. In Australia the TS is a large (approx. $15billion), yet low-profile set of ....Investigating the Impact of Work Design on Productive Wellbeing in Mercy Health: The Modernising Third Sector. Around the world the Third Sector (TS) of the economy is coming under pressure to modernise their management. The typical approaches to modern management being imposed overseas may not be appropriate for TS organisations and therefore they need to be critically examined, especially for their impact on employees. In Australia the TS is a large (approx. $15billion), yet low-profile set of organisations, of which the health industry is central. This project will investigate the issues that make workplaces in a TS health organisation a healthier and more productive place to work. The results could directly help improve workplaces covering more than 150,000 employees.Read moreRead less