Transforming The Diagnosis And Management Of Severe Neurocognitive Disorders Through Genomics
Funder
National Health and Medical Research Council
Funding Amount
$2,499,330.00
Summary
Neurocognitive disorders (NCD) are one of the most common genetic conditions in our society and it results with a need for ongoing permanent care for many affected people. Until recently, only 30% of people with NCD could be diagnosed but this has changed with the availability of genomic testing where all genes can be tested at once. The use of genomics in the CRE will lead to new NCD genes being identified and this information being translated into a clinical setting.
A Longitudinal Study Of Psychopathology In People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$999,803.00
Summary
This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combina ....This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combination of questionnaire survey and in depth interviews of the young adults and their families or carers to track the course of their mental health. The study commenced in 1990 with nearly 1000 young people with ID aged 4-18 years and their progress has been reviewed every 2-3 years in over 75% of the original group. During the next 5 years we plan to follow their mental health during the critical stage of young adult life. During this time there is the greatest risk of mental illnesses such as depression and schizophrenia and the stresses of adjusting to new daily occupations, independent living or residential care and social contact away from the family. We will be able to study the specific emotional and behavioural problems faced by young adults with the main known causes of ID such as Down, Fragile X, Prader Willi and William Syndromes, as well as those who have autism. The great benefit of a long term follow up study is that it allows us to study the links between earlier family environmental, psychological and biological factors and subsequent mental health problems. We can also demonstrate the impact that mental illness in a young person with ID has on the family and parental mental health. The findings have implications for better diagnosis, improved care and management, early intervention and prevention of these common severe and under recognized mental health problems in this disadvantaged group of young Australians and their families and carers.Read moreRead less
Using 3D printing to improve access to graphics by vision-impaired people. This project aims to investigate the possible benefits of 3D printing for production of accessible materials for vision-impaired people. Currently tactile graphics are used to provide severely vision-impaired adults and children with access to graphical content used in education and in orientation and mobility training. This project is expected to clarify the kinds of graphics for which 3D prints are better suited than ta ....Using 3D printing to improve access to graphics by vision-impaired people. This project aims to investigate the possible benefits of 3D printing for production of accessible materials for vision-impaired people. Currently tactile graphics are used to provide severely vision-impaired adults and children with access to graphical content used in education and in orientation and mobility training. This project is expected to clarify the kinds of graphics for which 3D prints are better suited than tactile graphics, and to build capacity within the national accessible format provision sector for the production and use of 3D prints. Benefits will include increased educational opportunities and quality of life for Australians with severe vision impairment, through improved access to graphic materials used in education and orientation and mobility training.
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Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national p ....Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national policy aspirations for people with disability of rights, choice, inclusion and independence. Using social geography and recognition theory, the project expects to deliver new understanding and improved practice around how paid support relationships can foster mutual care, respect and value at a critically important time in young people’s lives.Read moreRead less
Sowing the Seeds of Innovation in the Prevention of Child Abuse and Neglect. The approach developed in this project will have significant benefits for child and family service organisations. It will enhance the spread and sustainability of promising preventive programs within the child and family services sector. In this way, vulnerable children and families will benefit from the increased availability of such programs designed to enhance their life opportunities. The project will also have sign ....Sowing the Seeds of Innovation in the Prevention of Child Abuse and Neglect. The approach developed in this project will have significant benefits for child and family service organisations. It will enhance the spread and sustainability of promising preventive programs within the child and family services sector. In this way, vulnerable children and families will benefit from the increased availability of such programs designed to enhance their life opportunities. The project will also have significant flow-on economic benefits for Local, State and Federal Governments by decreasing the social and economic costs associated with child abuse and neglect.Read moreRead less
Special Research Initiatives - Grant ID: SR0354508
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
A collaboration to study organisational and social factors of work practice change to reduce risk of harm in healthcare. Preventing harm is a national priority in healthcare and research. Recent studies that quantified the extent of healthcare error has focussed policy attention on technical solutions to manage risk. This focus has not brought hoped-for sustainable improvement because the often-invisible environmental barriers to change have not been identified and addressed. A cross-disciplin ....A collaboration to study organisational and social factors of work practice change to reduce risk of harm in healthcare. Preventing harm is a national priority in healthcare and research. Recent studies that quantified the extent of healthcare error has focussed policy attention on technical solutions to manage risk. This focus has not brought hoped-for sustainable improvement because the often-invisible environmental barriers to change have not been identified and addressed. A cross-disciplinary collaboration of academics, consumers and industry partners will link to investigate the organisational, social and psychological factors that facilitate or impede change and the conditions under which sustainable improvement can be achieved. The collaboration is unique. Economic, industrial, societal and professional outcomes with international implications are expected.Read moreRead less
Creating and sustaining a strong future for volunteering in Australia. This project seeks to answer the question of how to increase social participation by converting non-volunteers to the benefits of volunteering. In Australia today, communities and governments are increasingly dependent on volunteers to build social capital and deliver an increasing range of services. A world first, this project aims to create new theory by examining three levels of analysis: the micro level of the individual ....Creating and sustaining a strong future for volunteering in Australia. This project seeks to answer the question of how to increase social participation by converting non-volunteers to the benefits of volunteering. In Australia today, communities and governments are increasingly dependent on volunteers to build social capital and deliver an increasing range of services. A world first, this project aims to create new theory by examining three levels of analysis: the micro level of the individual volunteer or non-volunteer; the mezzo level of the volunteer-involving organisation; and the macro level of society. This innovative approach aims to identify, analyse and develop a tool to help organisations build Australia’s civil society and develop policy to create a sustainable volunteer sector into the future.Read moreRead less
Young people's understandings of the relation between work, the labour market and education: Their origins and effects. Young people's pathways between school and work have become much more diverse and complex than in the past. Yet the impact of family background on their education and employment outcomes has hardly changed. This project focuses on young people's perceptions of the relation between work, education and the labour market and the pathways open to them. Taking account of recent m ....Young people's understandings of the relation between work, the labour market and education: Their origins and effects. Young people's pathways between school and work have become much more diverse and complex than in the past. Yet the impact of family background on their education and employment outcomes has hardly changed. This project focuses on young people's perceptions of the relation between work, education and the labour market and the pathways open to them. Taking account of recent major changes in the youth labour market, the research aims to understand the role of these perceptions in shaping young people's choices and pathways, how these vary according to social background and experience, and how they affect employment outcomes.Read moreRead less
Social disadvantage and economic recession: promoting inclusion and combating deprivation. The onset of recession in the wake of the global financial crisis has reawakened concern over inequality and exclusion. This project will feed directly into the government's new social inclusion agenda by providing a better understanding of the nature of social exclusion, its relation to location-specific and other dimensions of disadvantage, and the processes that trigger and sustain exclusion. A speciall ....Social disadvantage and economic recession: promoting inclusion and combating deprivation. The onset of recession in the wake of the global financial crisis has reawakened concern over inequality and exclusion. This project will feed directly into the government's new social inclusion agenda by providing a better understanding of the nature of social exclusion, its relation to location-specific and other dimensions of disadvantage, and the processes that trigger and sustain exclusion. A specially designed survey will be coordinated with other data collection activity to provide timely new information that will assist government and non-government agencies to promote social inclusion and tackle the root causes of disadvantage.Read moreRead less
Keeping my place in the community: achieving successful ageing-in-place for people with intellectual and developmental disabilities. This project, in partnership with aged care and disability agencies across two states, aims to examine ways the aged care, social and health needs of people with intellectual and developmental disabilities may be met in rural and urban settings. It will explore mechanisms that will lead to a better integration of the aged care and disability sectors.